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Old 06-03-2011, 02:18 PM
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Anyone on Topamax w/keppra?


Hi there,

Well, I almost made it to 6 months without any seizures and then on Sunday BAM! 5 tonic clonic's. I ended up being hospitalized for a few nights. They ran a CT, CAT, and EEG while I was there. they all came back normal. My potassium was out of wack though pretty low. they had me on a drip while i was there. Anyway starting topamax tonight to see how that goes anyone elese out there taking it with keppra?
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Old 06-04-2011, 09:10 AM
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Wow. 5 tonic clonic's and the tests came back normal?! I hope your potassium is back to normal.

I take 3000 mgs. Keppra and 200 mgs. Topamax daily. Once was taking more Topamax, but was too doped up and couldn't function.
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Old 06-04-2011, 12:56 PM
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What was it like when you first started taking the Topamax? Did you get teh tingly fingers and the drunk/tired feeling that I keep seeing people mention?
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Old 06-05-2011, 11:30 AM
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Once in a while I experience the tingling sensation, and yes I do tire easily. The drunken sensation eventually subsides, hopefully, depending on the dosage you are on.
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Old 06-05-2011, 06:50 PM
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Me!


I am on 1500 mg xr of keppra daily and just added topamax three weeks ago. They are working me up slowly and I have not had a seizure for several days. I do notice the pins and needles in my feet but movement is helpful. My taste instantly changed! Always thirsty but can't stand the idea of anything with carbonation. Fruit and salads! I have felt more emotional but I think it is related to the fact that it is the third time in 3 years no drive. Now.... I realize this is not going away. I have to learn to live with it. I guess as I get older... it is getting worse? Good luck to you!!
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Old 06-06-2011, 02:42 PM
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Not on Keppra, but I am on Topamax. The tingling is in my hands and feet and I'm still waiting for that to go away. It started to but I just increased dosage and now its back so I'm hoping it will go away again. I am always thirsty but the only carbonated beverages I can drink are the light colored ones, sprite, mnt dew, orange... can't stand pepsi, cokes, or anything else dark. I generally don't drink soda anymore though and just stick to water. More emotional? Yes, we'll just leave it at that for now...
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Old 06-07-2011, 06:53 AM
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I am on 1500 mg of Keppra (generic) as well, and was just on Topamax with it, but am now off the Topamax (also generic), getting ready to start Lamictil today in fact. I had been on 100 mg of Topamax daily, but it was discontinued due to side effects of facial twitching (eyelids, lip, chin). It did not cause any emotional side effects, but I did lose weight on it too, which I didn't have an issue with as while I'm not grossly overweight, I was up to having a good 10 lbs chopped off me! I did have the tingling feeling around my lips, but it was nothing terrible. I did not feel doped up or confused on it at all, at least not on the dose I was anyway. My sole problem was the awful facial twitches, and certainly not everyone gets that as it's not even listed as a side effect.
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