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#41
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__________________ Epilepsy has laid claim to many great writers. Dostoevsky describes 17 accounts of seizures in his novels. Lewis Carroll suggests the aura of temporal lobe seizure in "Alice and Wonderland". We are all in fine and brilliant company! |
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#42
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| My heros are my parents. After my accident my parents took care of me even though there were no garantees. Not only did they have to deel with an adult daughter who had the ability of a 5 year old, but the strange actions that turned out to be seizures. They knew just when I needed a extra push, and when to leave me alone. Even now that Im strong enough to live on my own, my dad will come and help me out w/ my house. Today when I got home he had cleaned out my gutters. Im not sure how things would have turned out if it havent been for my parents! |
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#43
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| David - What a wonderful poem. Reading some of these stories reminds me that God does not make mistakes and he always puts people in our lives for a reason. I do believe that there are really angels on earth and they come to us when we need them the most.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
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#44
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| I have 3 hero's who i honeslty dont know what i would do without them. Firstly my mum and dad who helped me get back to full health after i was ran over and then 6 years later when i was diagnosed with epilepsy. If it wasnt for my dad i wouldnt be here now, i had my first seizure at the top of the stairs and my dad had been at the bottom shouting me and he caught me at the bottom which i do feel so grateful for. when i was diagnosed, i couldnt except it, that i was different and my life wouldnt be the same. Everything my doctor told me not to do i did, i didnt take my medication at first and if im honest it didnt get me anywere and it did me no good because i just kept having seizures but i wanted to prove i wasnt different and i was like that until one afternoon when my mum and dad sat me down and told me i wasnt different i was special, you cant change your past but you can make your future. A few small words but they meant so much to me and they made me see that yes having epilepsy does change your life and you do have to be extra careful at times but epilepsy doesnt ruin your life, it just makes you stronger. My 3rd hero is my boyfriend, when we first met i was worried my epilepsy would put him off me but he has been so great. All the times ive felt down about my epilepsy, he's always been there to cheer me up, when ive had doctors appointments and appointments with Neurologist he's always been there by my side. When ive had seizures, he's been there when ive come around and just the little things like asking me if i still feel funny and am i ok now mean so much. Without these people i wouldnt be where i am today, they have helped me so much with everything that has happend and there isnt anything i could do to thank them enough. |
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#45
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Heroes.... I have 3 heroes. 1. My dad....without his laid back personality, I might have ended up a very scared and up tight adult. He taught me how real men were supposed to be. And the poor guys I dated had to live up to him as my role model of a "real man". But it was definitely a good one. 2. My mom....looking back, I realize how hard it must have been watching me have seizures and not being able to stop them. She pushed me and never let me settle for second best from myself. I wouldn't be where I am if it weren't for her and my dad. 3. My husband...I had a seizure about a month after we met. I thought he'd run screaming but he stuck by me. He goes to all my doctor's appointments, and has even called off from work when I've had a seizure. When I wake up after a seizure, it's to his smiling face. Back in February my family and I were camping at a nearby campground. The tents were all set up, and we had just finished dinner. We were sitting around the firepit enjoying a nice camp fire. The next thing I knew, I was staring up at my hubby. One of my eyes hurt and I asked him what happened. The look of relief on his face. He told me that I had had a seizure and gone tumbling into the firepit. I had hit my eye on a chunk of concrete in the firepit. My poor eye was black and blue. My hubby, noticing that I wasn't getting up out of the firepit ran through it with just a pair of sandles on, picked me up, and put me down on a piece of carpeting. Surprisingly, he wasn't burned. And my hubby had to put up with dirty looks whenever he and I went out together. For that, and so much more, my hubby is my hero.
__________________ "Watch your words, for they become actions. Watch your actions, for they become habits. Watch your habits, for they become character. Watch your character, for it will become your destiny." Epilepsy 101 |
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#46
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David, I'd love to talk to you more about this story, so if you feel so inclined, please send me a PM. I'm an author of a memoir about raising a little girl with a rare brain malformation. ("Schuyler's Monster: A Father's Journey with His Wordless Daughter", St. Martin's Press 2008.) I am a disability advocate and will be speaking at a number of speech/language conferences in the coming months. More importantly, perhaps, Bobby Ray Hudson is my father, and the subject of my next book. I hope you'll write to me soon. Thanks! -- rrh Last edited by Bernard; 08-25-2008 at 09:07 PM. Reason: remove email per forum policy |
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#47
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| MY DH who's always there for me when I'm upset and crying because of a seizure. He's always been understanderstanding and been my shoulder to cry on. I've cried on him so many times in the 18 years I know him.And I've ask him wy he sticks with me because of my seizures he says I love you and you can' t help you have seizure. That means a lot to me. Belinda
__________________ (A)abort (B)fail (C)retry (D)throw computer against wall southern and proud of it. I've had a VNS since 2000 |
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#48
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#49
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No Clown in this Circus I would have to thank my live-in compainion who has stood by my side, while my coping with two psychological disorders. When I had my first T/C seizure he was by my side, knowing the right thing to do...not restraining me, tilting my head to the side and calling 911. When adjusting to larger doses of Lamictal and couldn't walk, loosing my balance having to hold onto furinture to cross a room, he'd be there to strongly hold me up. Whenever he hears a thump at the other end of the house, he comes running to make sure I didn't have another drop down. Two psychological disorders and now Epilepsy, I often feel like a three ring circus but he's helped me keep my balance, both psychologically and physically, while I now walk the tight rope, having Epilepsy. Thank you M
__________________ Epilepsy has laid claim to many great writers. Dostoevsky describes 17 accounts of seizures in his novels. Lewis Carroll suggests the aura of temporal lobe seizure in "Alice and Wonderland". We are all in fine and brilliant company! Last edited by Cinnabar; 09-18-2008 at 09:48 AM. |
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#50
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#51
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My hero would be my best friend, Katie. We've been each other's support system for nearly 25 years now...and she's seen me through almost every seizure that I've had in that time. My husband, who SHOULD have been the one to do that, would just walk away......so she would step in, and take over. To say that I love her with all my heart is a GROSS UNDERSTATEMENT. I would have been dead several times over if it weren't for her......... |
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#52
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| My hero would be my fiance who I have been with for 5 years. So many times he has caught me when I have fallen. He has been so understanding and when I feel like a burden he just tells me its not my fault that I have E and he loves me whatever happens. Also my mum and dad as they went through so much when my seizures first started. It must have been so scary for them. My mum died 6 years ago but I no she is always with me like an angel. Im glad I have shared this with everyone as these people are so special. lol xx |
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#53
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| I am glad that we have these hero's in our lives. There are so many people who don't have them. And Brain, I understand the Hero of a child. My son is my hero to. He is what keeps me going every day.
__________________ Climb out on a limb, that is where the future is! |
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#54
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| Do you think it's possible to have a deceased person as a hero? I think of my Father-In-Law as my hero because he was the best man I have ever known. I never saw him without a smile on his face and an answer for any problem you might have. I wish he was here today to lean on. Last edited by walksalot; 01-08-2009 at 01:35 PM. Reason: indention |
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#55
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Yes, I do believe a deceased person can be a hero. My Dad has been gone almost 9 years already, but he is still a guiding force in my life. He taught me a lot simply by example. |
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#56
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Certainly...
__________________ Epilepsy has laid claim to many great writers. Dostoevsky describes 17 accounts of seizures in his novels. Lewis Carroll suggests the aura of temporal lobe seizure in "Alice and Wonderland". We are all in fine and brilliant company! |
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#57
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| I thought I would try writing another poem. I find the same satisfaction as composing a piece of music. This poem is about my guide dog who also had training in seizure work. I have had him 3 years now and he is 5 now and is a 65lb white lab male. He is the white dog in my photo. He is "my child" and I love him to death. This is dedicated to him, my hero: "My Umbro" When something is wrong Umbro always becomes strong. I start to walk off balance Then Umbro gives a glance, He knows what he should do. He stops me instantly as if so say: "Mom, you're not well", I then can tell. He turns into me, not allowing me to continue on my way. I then wait and hope I'm okay. Even though I am afraid, I know that each seizure will fade. Umbro is always by my side He is my guide, My Umbro. -Crystal 1-22-09 I wrote this in the creative writing room but thought by suggestion to place it here since my Umbro is my hero. He is always there for me, always on duty and is such a wonderful guide dog who helps me in many ways. |
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#58
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| Crystal, I'm glad you posted one of the most wonderful Hero stories I've heard yet! Animals are so sensitive. How splendid Umbro is able to sense when you're about to have a seizure. Truly, your protecter...Cinnabar
__________________ Epilepsy has laid claim to many great writers. Dostoevsky describes 17 accounts of seizures in his novels. Lewis Carroll suggests the aura of temporal lobe seizure in "Alice and Wonderland". We are all in fine and brilliant company! |
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#59
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Dogs are so special Thanks for sharing this with us Crystal. It is amazing how sensitive dogs can be to a human's needs. This is one of those little quirks of nature that I will never understand. Umbro is a great looking Lab. |
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#60
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| Crystal That is such a sensitive poem. I, too, had a dog that could predict seizures. He was a Golden Retriever, Charlie. He's gone now, and there'll never be another like him. He would come and either lay his head on my lap if I was sitting, or paw my leg if I was standing. We haven't found a dog like him since. It's like losing a family member. I hope you keep your hero. Umbro, for many years to come. |
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| care giver, hero, inspirational |
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| Fighting Monsters with Rubber Swords: Like a Father | This thread | Refback | 08-27-2008 06:18 PM | |