patients word of mouth!

[survivor]

Hello Dear all! From the very day I joinned this forum my urge to do something for our other friends who suffer from E increased and my book on E could be written with full swing and vigour. Its here that I came to know that all of us face similar problems and only we can understand each other really well. My book will be incomplete without u all. I really have a feeling to make this book of mine- Our book. Kindly post your views which will be quoted in the book. It can be anything you want the world to know (ofcourse related to E), anything inspirational, anything which may help the patient or the family in some or the other way. These quotes will help the others like us who can not join forums like this and get help, support and information. These quotes will be quoted in the chapter "Patients word of mouth". Awaiting your responses......................................... ..
Shagun

[survivor]

Ooooooooooopss forgot! Suggest the name of the book too!

[Nakamova]

Hi shagun --

If people submit their views, perhaps they can choose whether to be quoted with their full names, or just first name and initial, or perhaps even anonymously.

You might want to give some specific topics to help people get started. Here are some sample topics:

Right after Diagnosis
Dealing with Doctors
Symptoms and Side Effects
Tools, Tips and Tricks
Family and Friends
etc...

[marlena23]

Never give up. Only you know how your body reacts and if you have a doctor that is not willing to listen to you, its time to find a new one. Good doctors are out there, they are few and far between, but don't let ANYTHING stop you from getting the care you need.

[survivor]

Lots of thanx Naka! Its True! What a dumbo I am! Well dear friends write the name at the last of the post u want to be mentioned (full names, or just first name and initial, or "A" for anonymously). As far as the topic is concerned each one of us has different things they would like to tell. Some may want to talk about difficult diagnosis, some about money problems, some about the side affects, some about the daily problems we face, some about giving hope and positive attitude................................. I think we have a lot to tell. Really lot! Lets open up, just posting here wont do, let the world know, let other people who are normal know what we go through!

[Cint]

I think we have a lot to tell. Really lot! Lets open up, just posting here wont do, let the world know, let other people who are normal know what we go through!

I DO let the world know what I have been through and go through. And I will keep telling the world in my own way and time, sometimes one person at a time.

[epileric]

Anybody want to share anything re.Right after Diagnosis, Dealing with Doctors, Symptoms and Side Effects, Tools, Tips and Tricks, Family and Friends or anything else?

[Birdbomb]

John Lenon said it best - "Life is what happens to you while you're busy making other plans."

Whether you are born with epilepsy or develop it later on, your life still continues. Don't allow epilepsy to come between your goals and dreams. Unfortunately, society is still quite ignorant about epilepsy and makes it much harder to reach your goals and dreams. Keep going. Keep trying. Teach others about epilepsy even if it's one person at a time.
And keep a sense of humor, if you take yourself too seriously no one else will. Remember pink and purple colored hair is a great way to open doors!

Birdbomb

[stilldancing_98]

I did pink, purple, and blue. lol way to go!.