You know you have epilepsy if...

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

When someone turns on rapidly flashing Xmas lights at the office directly in your line of vision and you are out of chair asking them to turn off the flashing while babbling semi incoherently and shaking like a leaf.

The really funny thing about it is that a flashing light (ie malfunctioning fluorescent globe) normally just makes me agitated. These ones for some reason had me feeling sick and shaking like a leaf in seconds which I can only put down to the speed of the flashing, the fact they were right in front of me. Took about 15 minutes for my right hand to stop shaking.

Then the office manager was telling me that maybe its just hormonal, or the fact its a bit hot outside (however I'd been in an airconditioned office for about 2 hours when they turned them on).
 
Last edited:
You are trying to use your Walmart credit card over and over again and it keeps being denied and you are arguing with the manager of the store because you know its good. The line is long,they are checking the card and no such number exist. Later when you come to your friend tells you , you both go back to the store to reclaim your card, you had been using your link card number which you insisted was your walmart card number. ACK!!!
 
when you end end up at a hospital because of a you've been going to for 30 years and you ask where are you?
 
WHen people ask you what service your service dog does; and all you can say is "ahhh uhhh, um, well i have a seizure disorder..." because you suddenly can't think of the word you have always used; 'epilepsy'
 
new blood smear on the wall in the bathroom, and you just say "ok" and keep doing what you were up to
 
Become an advocate to make you fight for something you love. It awakens you. It gives you that reason to live again. Well, I'm here and the school boards better start watching out,Im back no child is going to get raped again under my watch.
 
1. You have no idea why you just ran into your in laws' office to hide. Why not the bathroom?!

2. You find yourself standing on one side of the road and haven't got a clue how your husband ended up on the other side so fast.

3. You stop in the middle of a sentence to ask what you were talking about.

4. Your husband comes back with the fruit and vegetables and asks you why you're still standing there NOT getting the fries and all you say is "What? Fries?".

5. You discover that what you wrote yesterday did NOT make any sence...
 
You know you have epilepsy if: your tounge looks like its been in a meat grinder. :p
 
Or if every time you go out all your friends girlfriends constantly stare at you and ask you if your ok every 15 minutes.
 
All of the furniture in your specialists' office all has nice, smooth, rounded edges, or looks like it was made by Nerf.
 
if you cant stop to think about something with everyone quitting to rush over and ask if you are ok.
 
You discover that what you wrote yesterday did NOT make any sence...
I've done that plenty of times, written something which made no sense & not realised until later. When I send an email or post a message I usually proof read the email/message after I sent it lol (hense the reason most of my posts on here have been edited lmao)

My seizures are pretty much under control but I do sometimes get a funny feeling where my head feels weird & i hear a weird noise which usually only last a couple of minutes. The majority of the time I can still do things normally while I feel funny but there were a couple of funny feelings I had last year where I wrote gibberish while I had the funny feeling.

I try not to let the funny feelings bother me & joke that the 2 episodes where I wrote gibberish was because I was bored with the English language & decided to create my own language to confuse the hell out of people including myself :pfft:
Even though these gibberish episodes don't bother me I am still going to discuss it with my neuro who I am due to see next month.
 
Last edited:
You know you have epilepsy if you... are thinking deeply so you stare into space and your mother is looking at you like 'oh she is having a seizure' lol
 
you dont know if it was a dream or a seizure, but you squeeze a certain muscle, and when you wake up. you don't don't check the bed. the dont do anything, you just run to the bathroom, and find tissue and wipe. thankfully. I was clean. I still don't eat enough.

this is the first time this has happened I think, but really. Pee I can deal with. this is borderline depressing
 
Face palm noooooooooo that's wrong. Some things just cant be unread.
M8 I feel for you.

Sent from my GT-I9505 using Tapatalk
 
sometimes all those descriptive writing classes do pay off :p It was a dark and stormy seizure.....
 
Thats what I love about this site.
We are all in a similar boat, some worse than others.

C0urt hopefully it has passed for a long while.

Sent from my GT-I9505 using Tapatalk
 
---you spend most of your day standing in the middle of your flat saying, "Where the *&%$ was I going?"
--you spend most of your gaming time standing in the city centre saying," Where the %$#@ was i going?"
---a granny who's talking to herself while doing her shopping--("then I must get the yogurt, and then the French loaves and the soap.") laughs at you because she spots you doing the same.
--every time you open a piece of software you say, "But why did I need that in the first place?"
--you walk up to your friend Lisa Marie in Woolworths and ask her what on earth she's going walking around so soon after her surgery and she says, "I'm Senta, dear. From the Book Shoppe."
--when you're unpacking your groceries, you usually pull out an item that makes you say, "But why did I buy that?"
--when opening instant messages, you can often be heard saying, "but what does that even mean?"
 
Last edited:
You know you have epilepsy if: your tounge looks like its been in a meat grinder. :p


You have my sympathy. I bite my tongue to bits every time.

On a similar note: you know you're epileptic if you don't notice the blood at the corners of your mouth.
 
Back
Top Bottom