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  #1  
Old 05-23-2008, 04:23 PM
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Thumbs up American Epilepsy Outreach Foundation (AEOF)


FYI - Erin Leyden sent me an email with an announcement for a fundraiser in Chicago:
Quote :
Dear Friend,

The American Epilepsy Outreach Foundation (AEOF) is hosting their First Annual Wings of Hope Benefit on June 13th in Chicago. Our National Celebrity Spokesperson, Hunter Tylo, from the Bold and the Beautiful, will be presenting the Mickey Tylo Butterfly Award in honor of her late son, Mickey, to one doctor that has gone above and beyond in the field of Epilepsy. Mickey tragically died of a seizure related accident last October, he was only 19. We recently received confirmation that People Magazine will be also be in attendance to cover our story.

Sponsored by Cyberonics, makers of the VNS. Catering by J&L Catering.

Some Silent Auction items include, Signed autographed guitar by Dierks Bentley; Two sets of Dierks Bentley tickets to any of his shows along with a meet and greet; Cross-town Classic, Cubs vs Sox tickets; additional Cubs tickets;$300 Morton Steakhouse Gift Certificate; Wii Game; Stomp Tickets; A Seizure Movement Monitor from EMFIT; Misc. Jewelry; Wine and Cheese Class at Goose Island for 12 people; A Yacht Race on Lake Michigan; Great America Tickets; and much much more over 70 items in all.

Please join us for this inaugural event, it will be truly spectacular.

Please help spread the word, forward it to your friends, and so on, and so on. Together we can change the face of Epilepsy.

Hope to see you there!

Purchase your tickets on line today

Meet Emmett and Learn the Facts about Epilepsy

Sincerely,

Erin Leyden
President and Co-Founder
The American Epilepsy Outreach Foundation
www.epilepsyoutreach.org
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Old 05-23-2008, 05:26 PM
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Bernard -

I sent this to all board members and staff at our local foundation. I thought that because we are not that far from Chicago, some of these people might like to go.
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Old 05-24-2008, 08:54 AM
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Thanks Laura, sounds like it's going to be a neat event.
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Old 05-24-2008, 01:39 PM
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Thumbs up


Hope it all becomes a
MAJOR BLAST!


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Old 05-24-2008, 01:48 PM
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I use the VNS and it works good for me. I hope this fundraiser turns out good. I have had the VNS for four years now. Before I got the VNS I use to have a seizure several times a day,everday. I had them both day and night. I hope this fundraiser can be helpful to a lot of people.
Hawke
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Old 05-27-2008, 04:50 PM
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Thanks for your post about this great event taking place in Chicago! We've posted the link to this event on the Illinois Epilepsy Action Network's Facebook and MySpace pages. We hope this helps spread the word!

All the best,

ILEAN
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Old 05-30-2008, 11:46 PM
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I am from IL and I will be there this summer. Many relatives there.I will get more info before I get out there.
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Old 12-02-2008, 11:39 AM
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Erin spreading awareness in Chicago via local ABC news


Congrats on getting some media attention Erin.

http://abclocal.go.com/wls/story?sec...rticle-6524978
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New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

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