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#21
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#22
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| I believe it is unjust for anyone to have to deal with Epilepsy or any type of disorder. The good thing is that research has been progressing over the years. During the conference I heard a statement that made me smile. It was stated that 10 to 15 years ago, the word cure was never said for E and now researchers are working towards a cure. I think this is some awesome news. There is always hope.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
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#23
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| Just uploaded some of our pics from D.C. in my album.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
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#24
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| hope to participate one day. |
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#25
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| Laura, I'll be glad they find the cure for Epilepsy and other medical problems.
__________________ Have a good day. Hawke |
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#26
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| Thats great you both went. I am looking forward to this years walk. I am going again. I cant wait. One of these days I will make it to the Washington D.C. Walk.
__________________ "Do what makes you Happy, Be with who makes you Smile, Laugh as much as you Breath & Love as Long as you Live." |
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#27
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#28
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Anyone going this year? for the fourth annual National Walk for Epilepsy, March 27, 2010 on the National Mall in Washington, D.C? I would like to meet up with some of you.
__________________ "The Golden Rule is that there are no golden rules." ~George Bernard Shaw |
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#29
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| No confirmed plans yet, however I am going to try to go. I really enjoyed it last year. Ashmsthg was thinking about going. I don't know how that is going. If I am there, I would love to meet. I met Tinasmom (Laura) and her granddaughter Nicole last year. I helped with a group of ten teenage boys last year. Very challenging and uplifting at the same time.
__________________ Character is doing the right thing when no one is looking. |
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#30
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| We will be there again this year. Waiting to hear if Nicole is going to be picked for the Kid's Speak Up conference. If she is picked, we will be there for the entire week. Otherwise we will be there for the weekend. I have to come up with a new idea for tee shirts.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
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#31
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| Friendswood is a long ways away from DC. It's probably not in the cards for us.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#32
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| Nicole has been chosen to be the rep for Southern WI at the Kids Speak Up conference. Our local newspaper interviewed all of us and will be running the story on February 2nd. We are also registered for the National Walk again this year. The paper is going to put our information in the article about donating for the walk.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
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#33
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| That's great! |
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#34
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| Great, Nicole!
__________________ "The Golden Rule is that there are no golden rules." ~George Bernard Shaw |
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#35
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![]() ![]() for Nicole![]() ![]() for Laura
__________________ Character is doing the right thing when no one is looking. |
| Tags |
| efa national walk, national walk |
| Thread Tools | |
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| Thread | Thread Starter | Forum | Replies | Last Post |
| The National Epilepsy Walk! | ashmstng | The Bulletin Board | 19 | 11-11-2008 08:20 AM |
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| Walk for Epilepsy in DC | LGS Foundation | The Kitchen | 8 | 03-18-2008 03:57 PM |
| Epilepsy Freedom Walk | RobinN | The Kitchen | 0 | 09-24-2007 12:13 AM |