Just finished brain surgery
Keep looking!.....and keep the load light!........
I'm with you. Replacing the batteries on something that's a hit-or-miss didn't attract me either when I found out I wasn't a good candidate for brain surgery.......so I really started looking into the 'alternatives'.
Pick something you're comfortable with...that's for sure!
Hi Sam, glad to see you back. It doesn't seem like 5 weeks since you last posted. Where does the time go?
Anyway, if you are looking for alternatives, you can look at the chart in my signature. You should get some ideas and you can investigate further from there.
BTW, Stacy (my wife) completely elimnated her absence seizures with EEG neurofeedback.
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.
Would you like to help support this forum?
Sorry the surgery didn't work for you, but take heart, you do have other options!
I had a right temporal lobectomy and some of my pre-frontal lobe removed in a failed attempt to control my seizures in 1988. Long story, but using a combination of behavior modification, diet, supplements, yoga, and neurofeedback, I have been seizure free since 1998.
Don't let the idea of scar tissue spook you. I was told that scar tissue was one of the main causes of my seizures. I had massive scarring from multiple strokes, spinal meningitis, and two brain surgeries. In 1996 I was again evaluated for a possible 3rd brain surgery to try and stop the seizures, but there was too much scar tissue for this to be a possibility. At that point, I just continued with all my non-drug strategies and two years later was seizure free.
You may not find a way to become seizure free, but there are many things you can do to learn to manage seizures on your own. Check out all the links on Bernard's alternatives for starters.
The key, I found, is raising the seizure threshold, finding all the things that may trigger a seizure for you, and address those. The higher you raise your seizure threshold, the less likely you are to have a seizure and no one can predict with certainty how much control you can achieve. You may want to check out this book too, "Epilepsy: A New Approach," by Reiter and Richards. I see used copies of it on Amazon often. I buy them and pass them out to anyone I meet who has seizures. Also, check out the web site for Dr. Andrews' and Dr. Reiters' clinic in California. It is the only epilepsy clinic in the country that emphasizes teaching clients strategies for managing seizures on their own.
I suspect that, like, me, you were told that surgery was your "only" hope of ever getting seizures under control. Well, that's just not true. It is a bummer that the surgery didn't work, but it wasn't your "only" hope and I encourage you to keep checking out your other possibilities, and look to this forum for support!
Last edited by Zoe; 11-03-2007 at 12:12 AM.
Hang in there brother,
Sure glad to see you back, yet sorry that you had such a rough go of it.
Zoe has some wonderful ideas, and she sure has been through it all. Quite an amazing story.
I suggest you click on to the link to my site and begin your research.
For some, the VNS has been a God send, for others a devise from Hell. The problem is there is no way of telling if or how it will work for you until it's implanted and activated.
Sammy - welcome back and sorry it did not
all work out for you.
But didn't the Surgeon remove what he/she
could or didn't bother at all? I've read some
articles and journals where surgeries had been
performed where they had removed as much
as they could without touching that or those
specific areas, while it didn't eliminate the
seizures entirely, it did reduce it (seizures)
greatly and the meds they were one were
reduced. But then again I guess it all depends
on the location where it all originated from as
the articles and journals I read weren't that
detailed and specific.
But like Birdy said - VNS can go both ways.
VNS can be a wonderful blessing to some
or it can be a nightmare from hell to others.
Neuropace's RNS looks very promising and
looks much more positive than VNS, but
still in the research process.
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