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Old 04-12-2011, 01:50 PM
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Brain Neurologist talking about surgery


I saw a new neurologist today, and she was very helpful. She said there isn't really a way to capture my episodes on an EEG because they are too infrequent, but she said the is concrete evidence of nerve damage in my eye (she saw this with a quick eye examination) and told me that I really need to find a way to shrink my pituitary gland because I could develop vision problems or even blindness.

I told her I was taking medication for it and she suggested that I up the dosage of that, and I told her I had just reduced it (with the doctor's permission) because it was causing me to gain weight. Then she suggested I see a neurosurgeon to discuss the possibility of surgery or radiation.

So: live with the possibility of developing cushing's syndrome from my medication or get surgery? Those are kind of my options...

Also she said I might want to try switching medications to Lamictal. I'm currently on tegretol and neurontin.
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Old 04-12-2011, 02:46 PM
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She does sound helpful, and on top of things.
Did she say why you should switch to lamictal? Just curious.
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Old 04-12-2011, 02:50 PM
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We're going to talk further when I go back for an emg to check the functionality of the nerves in my left arm (I've been having neuropathy since I started having seizures). I think Lamictal was just the first thing that came to mind because she doesn't want to put me on Dilantin or phenobarbital because I already have cerebellar atrophy.

Edit: she wants to switch meds because mine haven't been very effective.
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Old 04-13-2011, 01:36 PM
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That's a difficult decision. But what is Cushing's Syndrome?
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Old 04-13-2011, 08:39 PM
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http://endocrine.niddk.nih.gov/pubs/...s/cushings.htm
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