My daughter Ellie has tonic clonics & I believe myoclonics early morning, like 4:30am - 7am. We've only had the dx on E for a couple weeks & we have an appt with the Neurologist tomorrow for her MRI & EEG results (stressing!). I believe we will receive a dx of Juvenile Myoclonic Epilepsy & hopefully keep a handle on the seizures with her Keppra.
My question is this -- how do you all keep an eye on your children to know if they're having seizures in their sleep? For now I've just sleeping on the floor next to her bed & basically staring at her from 4 am to 7 am. Do others use video baby monitors or what? The thought of not knowing she's having a seizure scares the crap out of me! In 2 of her t-c she wet the bed so we would obviously have known those times, but in other t-c she's barely made a sound.
Thanks for your help!
My question is this -- how do you all keep an eye on your children to know if they're having seizures in their sleep? For now I've just sleeping on the floor next to her bed & basically staring at her from 4 am to 7 am. Do others use video baby monitors or what? The thought of not knowing she's having a seizure scares the crap out of me! In 2 of her t-c she wet the bed so we would obviously have known those times, but in other t-c she's barely made a sound.
Thanks for your help!