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Old 09-22-2011, 08:20 PM
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Combining medications?


anyone else have their kids on multiple medications?

My daughter has complex partials and we have been on keppra for what feels like forever and recently added zonegran...not sure if it is working or not yet...anyone else on this combo and having sucess?
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Old 09-22-2011, 10:45 PM
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Ive had epilepsy my whole life. When I was a kid, I was on all kind of medications, But since the age of 18, Ive been on Keppra and Carbatrol. I was on those two medications for over 12 years. Those together controlled my seizures very well. I was having complex partials and grand mal seizures.
Recently, since the end of May, Ive been on Keppra XR only. After having a video EEG done in march of this year, my dr felt like I didnt need to be on the Carbatrol and Keppra together. So he just put me back on Keppra. During March through may I tried other medications with the Keppra, but they didnt work out well. Vimpat caused depression and mood changes. Lamictal, I had an allergic reaction to. So Since May Ive been only on Keppra XR at 3000mgs a day.
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Kristin
Mommy to 3 Beautiful Little Boys
Caden 6/27/04
Caleb 5/17/05
Connor 11/9/06

Temporal Lobe Epilepsy
Simple Partial Seizures
Keppra XR (3000mgs)
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Old 09-23-2011, 11:16 AM
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I had zonergran added to my trileptal in april.I think its helped alot.Although I still suffered from many auras this summer in the heat and sunlight which has always been a big problem for me,they never turned into a complex and they usually fizzled out after 20 or 30 seconds without me losing my ability to respond like alot of my simple partials.I realize these are still simple partials but so mild and quick they dont interfere at all.Not to say Im completely seizure free or side effect free but it was a positive move for me.
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Old 12-23-2011, 07:42 PM
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at one point my son had 10 perscriptions that he had to take and he is 4. i think these doctors are crazy!!!! at one point he was taking depakote-1000mg a day, clonozapam-100mg a day plus an added dose on bad days, zonigram-200mg a day, lamictal-75mg a day, keppra-400mg a day,topamax-200 mg a day, sumatriptan for migranes (its a nasal spray), an anti nausea med they give to chemo patients, vitamin b6-200mg a day, and ativan for bad days. this was so rediculous to me and he was still having seizures every day!!!!! i wounder how much reasurch has been done about the effects of all the combinations of these meds!???! now we are down to depakote and zonigram but still no change, (the other meds stopped working at all and some made him worse!) and we are adding felbamate on tuesday! i wish you all the luck in the world....but like i said these doctors are nuts!!!!
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