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Infantile spasms treatment in infant give parents hope
treatment of IS
Sabril is the first choice treatment for IS in Holland for many years. In the US it was only approved recently by the FDA. I know many kids who did get controlled on Sabril (but I also know many who didn't.)
The most known side effect is a permanent vision imparment (only view straight forward, not at the sides.)
More information about Sabril as a treatment for IS here
http://www.kidsepilepsy.com/ : see search 'by treatment' and 'by diagnosis'.
ACTH is tried for many kids when Sabril doesn't work.
Ganaloxone is a promising, brand new med, especially developed for IS.
I recomment the IS forum http://infantilespasms.com/forum/
Mom to a 13-year old boy with Lennox Gastaut Syndrome; on the ketogenic diet since June 2004 and AED free
Being happy doesn't mean everything is perfect, it means you have decided to look beyond imperfection.
Last edited by Dutch mom; 04-29-2009 at 06:30 PM.
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