Coping With Epilepsy Medikidz Comic Book Explains Epilepsy
Sponsored Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Study



Reply
 
LinkBack Thread Tools
  #81  
Old 05-03-2012, 04:36 AM
CQ:)'s Avatar
Venerable Voice of CWE
 
Join Date: Aug 2007
Location: Aussieland
Posts: 3,275
Thanks: 1,565
Thanked 1,069 Times in 751 Posts
Originally Posted by scottsmomred View Post:
What a quick, patient and pleasant reply. I have high hopes for this forum. I saw others but wasn't impressed to join any. As a matter of fact, I don't belong to ANY other forums, chat rooms, etc., not even Facebook! lol! (that's about the only abbreviation I know, I am NOT computer lingo literate!)
Thanks so much for the info on how to make a post. My 30 year old son has just started having very different seizures and episodes of night terrors, sleepwalking, anxiety and hallucinations, after 15 years of the same type of grand and petit mal seizures. He was just admitted to the hospital and I am at my wits end. Didn't expect this after all this time, so I can use the hospitality of this friendly seeming and informative forum.
Again, thank you for your help.
You're more then welcome.
Sometimes when you are new to the world of forums it can be pretty daunting at 1st. You will meet a variety of different people - not only people who have epilepsy but also carers, family members, partners & friends & we all have different stories to share.
__________________
I know the meaning of LIFE ... Laughter Is Freaking Essential!

You are never too old to set a new goal or to dream a new dream.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #82  
Old 05-03-2012, 07:26 AM
RiffRaffMama's Avatar
Joined the Party
 
Join Date: Aug 2008
Location: Melbourne, Australia
Posts: 95
Thanks: 14
Thanked 35 Times in 27 Posts

Angry Horrified!


I'll admit I haven't read this whole thread, but the first page was enough for me to be utterly horrified that there are people out there who have to choose between paying for food and paying for medication. And food wins.
I understand both are essential, but there needs to be global programs for people who NEED medication. It cost me at most about $70 for 3 months worth of my epilepsy medication. When I was on my own (single parent) it was $12 for 3 months worth of my epileptologist meds. Why is this not universal? This is beyond wrong. I'm so upset for those of you in this horrible situation. If there's anything I can do to help, please let me know.
Xx Tracy.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #83  
Old 05-04-2012, 10:17 PM
Venerable Voice of CWE
 
Join Date: Dec 2007
Location: PA.
Posts: 1,585
Thanks: 252
Thanked 137 Times in 112 Posts
It does seem very unfair. However, it's absolutely necessary that we regularly visit our doctor for health care on a regular basis and practice a healthy lifestyle. I feel very strongly in favor of taking brand name medications because they DO make a difference between having no seizures or having a breakthrough seizure. It's a very fine line for me.
__________________
__________________________________________
WARNING: Humor may be hazardous to your illness.
-Ellie Katz
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #84  
Old 06-15-2012, 12:53 PM
Getting Comfortable
 
Join Date: Jun 2012
Location: The Bahamas
Posts: 12
Thanks: 1
Thanked 3 Times in 2 Posts
It's very hard for me to afford my meds, if the government hospice doesn't have them, one of my meds alone cost $65 (I'm on 4 different types). For some reason, it's not easy to find in the Bahamas. I'm only given 1 month supply at a time so getting my anti-epileptic drugs alone is stressful. ☹☹
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #85  
Old 09-02-2012, 03:56 PM
Ravensong's Avatar
Joined the Party
 
Join Date: Jun 2011
Location: Northern Kentucky
Posts: 26
Thanks: 4
Thanked 6 Times in 5 Posts
Send a message via AIM to Ravensong Send a message via Yahoo to Ravensong
I just recently got back into this forum again, and today found this thread. Hope it's ok to add to it; it's rather old. I'm on topiramate; I had to switch to generic at the end of 2010 because I could no longer afford the brand name on the high deductible health care plan I'm on. It runs about $1500.00/month until I meet my $5000.00 deductible, then it's covered at 100%. Problem is, who the heck can afford $1500.00/month? I've tried several prescription assistance programs, including the company that makes the drug, and I either make too much money, or they won't help because I carry private insurance. My doctor doesn't get samples of Topamax and, in fact, told me it would just be better if I didn't have insurance because then I'd get it free through the clinic. *sigh*

Anybody get assistance -and- have insurance?
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #86  
Old 09-02-2012, 08:46 PM
Venerable Voice of CWE
 
Join Date: Dec 2007
Location: PA.
Posts: 1,585
Thanks: 252
Thanked 137 Times in 112 Posts
If generics were exactly the same as brand name drugs, this would not be an issue. There has to be a fast, hard and strict rule for this to happen to medications that are critically monitored like those for epilepsy.
It's downright outragious. There may be some lenience for non-epilepsy drugs, but the original manufacturer should hand over the whole formula, including fillers.
__________________
__________________________________________
WARNING: Humor may be hazardous to your illness.
-Ellie Katz
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #87  
Old 03-17-2013, 01:58 AM
RavensLight09's Avatar
New Here
 
Join Date: Mar 2013
Location: California
Posts: 5
Thanks: 2
Thanked 1 Time in 1 Post
No this is the way medicare part D (prescription coverage works here) I can take gens for all my meds except for Keppra XR, that is slightly discounted to $215/month with a doctor's exemption. I jumped through the hoops, just NO medicare part D covers this drug. I get seizures on the generic of this medication, all the rest are $7. I am on disability for E. Paying this ammount means I am trying to live on $700/month. I am deducted out of my check for medical insurance, and hospital insurance. I live in California you cannot find a room for rent here for that amount, let alone eat, doctor's appts, transportation. Last year net I was making net $924/month because my prescription insurance covered it, with what has happened to US healthcare now, the story that is never told: I am having more strikes placed upon me than should be allowed. I was given a cost of living wage, but the insurance cost that does not cover Keppra went up in price, so now I make less than last year plus I have to take Keppra, I found a lump in my breast, my hormones do not know which end is up and I am having to try to survive on $200+ less than I did last year is that evening out the playing field? I was climbing up hill to begin with, and I continue on...life is a gift, without my E I would not be me.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #88  
Old 03-17-2013, 02:22 AM
Azusa's Avatar
Weaving the Community Fabric
 
Join Date: Mar 2013
Location: California
Posts: 127
Thanks: 3
Thanked 8 Times in 8 Posts
Send a message via Skype™ to Azusa
Originally Posted by RavensLight09 View Post:
No this is the way medicare part D (prescription coverage works here) I can take gens for all my meds except for Keppra XR, that is slightly discounted to $215/month with a doctor's exemption. I jumped through the hoops, just NO medicare part D covers this drug. I get seizures on the generic of this medication, all the rest are $7. I am on disability for E. Paying this ammount means I am trying to live on $700/month. I am deducted out of my check for medical insurance, and hospital insurance. I live in California you cannot find a room for rent here for that amount, let alone eat, doctor's appts, transportation. Last year net I was making net $924/month because my prescription insurance covered it, with what has happened to US healthcare now, the story that is never told: I am having more strikes placed upon me than should be allowed. I was given a cost of living wage, but the insurance cost that does not cover Keppra went up in price, so now I make less than last year plus I have to take Keppra, I found a lump in my breast, my hormones do not know which end is up and I am having to try to survive on $200+ less than I did last year is that evening out the playing field? I was climbing up hill to begin with, and I continue on...life is a gift, without my E I would not be me.
I think you can make more at McDonald's.
Luckily my work pays for my Atrociously high insurance bill(470)
I also live in california
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #89  
Old 03-17-2013, 06:25 AM
suebear's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2008
Location: IA
Posts: 548
Thanks: 198
Thanked 128 Times in 110 Posts
Originally Posted by RavensLight09 View Post:
No this is the way medicare part D (prescription coverage works here) I can take gens for all my meds except for Keppra XR, that is slightly discounted to $215/month with a doctor's exemption. I jumped through the hoops, just NO medicare part D covers this drug. I get seizures on the generic of this medication, all the rest are $7. I am on disability for E. Paying this ammount means I am trying to live on $700/month. I am deducted out of my check for medical insurance, and hospital insurance. I live in California you cannot find a room for rent here for that amount, let alone eat, doctor's appts, transportation. Last year net I was making net $924/month because my prescription insurance covered it, with what has happened to US healthcare now, the story that is never told: I am having more strikes placed upon me than should be allowed. I was given a cost of living wage, but the insurance cost that does not cover Keppra went up in price, so now I make less than last year plus I have to take Keppra, I found a lump in my breast, my hormones do not know which end is up and I am having to try to survive on $200+ less than I did last year is that evening out the playing field? I was climbing up hill to begin with, and I continue on...life is a gift, without my E I would not be me.
Something that was just discovered with my prescription insurance (Care Mark) is the fact being Blue Cross Blue Shield who has Care Mark runs all of the CVS pharmacies. So with that being said, you may want to consider where you are purchasing your medications at if you can get under this type of medication as it can actually do you benefit. I refuse to use CVS as I do not find any benefit by them and I don't like the pharmacy itself. I've always preferred to use Walgreen's pharmacy for years as the pharmacists are persons whom I have known for many years and have worked with them for many years (since my first surgery) and documentation travels upon request.

At any rate, something I can recall reading in another post was CVS will give a discount with medication and now I know why. Just a thought.
__________________
Temporal Resection-1995
VNS-2007
DBS for Epilepsy-2011
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #90  
Old 03-25-2013, 02:29 AM
Joined the Party
 
Join Date: Feb 2013
Posts: 45
Thanks: 2
Thanked 3 Times in 3 Posts
To anyone in Oregon: if you're uninsured/under-insured you can get on the Oregon Prescription Drug Plan... just a head's up to anyone on here who lives in this state. It's not very well known. I only found out about it a few years ago at a job-seekers networking group I used to go to. Before I knew about that, I found out that Fred Meyer's pharmacy price-matches to Costco and I was doing that for awhile.

(Sorry if this has already been mentioned, I don't have time to go back and read all five pages... and I have kind of a short attention span!)
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #91  
Old 11-28-2013, 05:59 PM
kristarenee's Avatar
Joined the Party
 
Join Date: Nov 2013
Location: New Mexico
Posts: 25
Thanks: 18
Thanked 7 Times in 5 Posts
I didn't read all of the comments so if someone already said this I'm really sorry. I'm in the US and I don't have insurance. I recently had to quit my job because of the way my aniexty was affecting me at work as well as my seizures. But if you have a Costco in your area, or even you can order it online they are very cheap with their medicine costs. I only pay 20$ a month for now my keppra, but I paid less then 20$ for my topamax.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
Reply

Tags
assistace, costco, financial aid, medication assistance, patient assistance

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Perspiration and medication RanMan The Library 5 09-27-2012 03:57 PM
Cold and/or flu medication RanMan The Library 5 06-08-2011 10:58 AM
Headache and w/ medication vtsammy The Library 18 10-10-2007 08:01 PM
Over medication at an early age RanMan The Kitchen 15 10-01-2007 03:47 PM
Curious about medication Blessed The Kitchen 10 07-29-2007 09:47 PM


All times are GMT -5. The time now is 05:12 AM.


Powered by vBulletin® - Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.