I'm baaack!! They called a CODE BLUE on me in the ambulance and also at ER, said pupils were both dilated, called CVA *stroke* - BUT, a SMART well-informed dr. who put my IV in my juggler vein in neck, felt my chest even before the monitor was put on and said - she's breathing - this is not a CODE she's just post-ictal. When I could at least slur my words out, couldn't move, I kept saying POST ICTAL and none of the ER staff seemed to know what that meant!!! SHEEEESH!! Come on now - EPILEPSY AWARENESS MONTH!! So, when I was totally "with it" I started informing every medical personnel that there are (I hope I'm right) about 30 types of seizures NOT just tonic-clonic (grand-mal) and that there are 3 stages - AURA, ICTAL, and POST-ICTAL. They said, "WOW - are you a nurse, you're really smart!!" No, dah, just had this for 50 yrs!!! Anyway, glad to be home, oh, then, the hospital messed up about my meds, did not give me the scripts, said the dr had them, got home, dr did not have them. Long story (u know me) short - finally got my meds about 11 p.m. last night.
NO seizures now (I hope for long time) - must take in both sodium and magnesium as 2 meds are messing w/electrolytes. THANK YOU BERNARD AND ALL FOR SUPPORTING ME!! YOU ARE AWESOMEEEEEEEE!!!!!!

thank you very much.

Hi Bernard, I believe you explained it very well. And I will quote you:Laurie, when I reply I will tell you if I see that oblong box you described.

Hi, Bernard, I just need a lesson on how to use this website. I've tried to get icons in my posts but when I click on them, only words appear. Is that because my ISP probably doesn't support them, or am I doing something wrong?

Hi, thanks for being a friend to someone who knew computer languages and could program way back when there were pc stations linked to the mainframe computer that took up a whole floor!!!!! AND, there was nothing called a Gigabyte only bits, byte, and the next one and I forgot it.........lol.

On my myspace site I have tried to make it E friendly so that nobody gets bonked out by my beautiful artistic work. lol

Any tips accepted graciously - oh - hi to Stacy!! big hug

My myspace is "ziggidypoo" I forget if I have 1 d or 2????

Brain fart day.

"Ziggidypoo" is what we call our cat when she goes into a wild manic mode:



YOU'RE THE BOSS ON HERE, can you change my name to "ZIGGIDYPOO" AND USE HER PIC AS MY AVATOR??

Thanks bunches. Nice to not be alone with E, that's a scarey thought!! Almost NOBODY understands. A funny memory just popped in, I recall being "out" and my baby boy at the time climbed up on my chest, put a finger in each of my ears and said "Mommy - are you in there?????" hahahaha, good question..... still wonder....hahahahha. God bless ya 4-ever!! Gail Lynn

Hi, a friend of yours referred me, "headstorms" on myspace. She's great!!! Check out my profile here for the LONGGGGGGGGGGGGGGGGGGG story and my myspace profile "ziggidypoo" - I'm just plain REAL, not stuffy or nothing, just "me". Cya, thanks for listening!! God bless ya, Gail Lynn

It's a shirt Laura (TinasMom) sent me. It's digital proof I'm a-wearin' it! There's a full-size shot in the albums I think?

Dear bernard , do you have any literature about the use of neurofeedback on Juvenile myoclonic , or is it indicated only in focal epilepsies? What is the average cost in USD ? ( there is no HMO or insurance system in india so all costs are borne by the patient.) The medical literature i've read so far is not very concrete on anything. Do you have to buy the machine and do it yourself or does it need to be done in a hospital setting? thanks for the info.

Thanks