I've been living with Epilepsy since grammer school. Over the years I have been on various meds & med combos.
At one point I was taken off meds. My neurologist at the time said I just had migraines. After a few years of dealing with seizure spells, I had two grand-mals seizures. I was quickly put back on meds. My neurologist then tried various meds. But none really worked for me. Unfortunately he moved away. I then got another neurologist. Soon I was faced with more meds. My med. trail is large. Some meds ended up causing me internal problems. That resulted in me having surgery to remove my gall bladder. My current
and only AED I'm taking Trileptal is causing me only one major side effect. It is very unappealing.
Generic AED (When I was on generic Trileptal I was having at least 4-8 CPS a month. Since my Neurologist DAW my Trileptal, that's dropped to around 4-6, so far. I believe if I can get my other triggers
under control it will drop even more.)
Hot temperatures (When I was young I had heat stroke and passed out in a department store. Soon after that I started having seizures. I prefer 40-60 degrees year round.)
Stress (This is the most problematic lately. There has been so much things happening these past two years. I have had nothing but stress. They say money doesn't buy happiness, but it would sure help in my case. )
After trying various meds & med combos, my neurologist suggested surgery. I've had several of the phase I tests. But I'm not sure if I want to go under the knife. I keep thinking of the 1% that have complications during surgery. My luck is non-existent!
What treatment would you get? If you had any of these done, what was the outcome? Did you have any complications, what were they? Are you the same person (minus the seizures)?
I'm still alive and ticking. Just a bit overwhelmed with many things. Family & neighbors stressing me out. I'm trying to get my health under control. My digestion issues seem to be more stable now. I've added "Plum Smart" to my daily diet. It has helped me a lot. I've also stopped drinking soda. It's been at least four months since I last had any. That has helped me loose 10+ lbs. I'd like to get my seizures more under control soon. But that doesn't look to promising yet. I'm still unsure about having any surgery. I want to look into trying Neurofeedback, but my insurance probably wont pay for it.
Trileptal @ 900MG/1200MG Surgery candidate, but undecided.
NYS (Capital District Area)
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