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BIGMAN131307 BIGMAN131307 is offline

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  • About BIGMAN131307
    Seizure Background
    ** Background Info. **

    I've been living with Eplepsy for over 15yrs. Over the years I have been on various meds & med combos.

    At one point I was taken off meds. My neurologist at the time said I just had migraines. After a few years of dealing with seizure spells, I had two grand-mals seizures. I was quickly put back on meds. My neurologist then tried various meds. But none really worked for me. Unfortunately he moved away. I then got another neurologist. Soon I was faced with more meds. My med. trail is large. Some meds ended up causing me internal problems. That resulted in me having surgery to remove my gall bladder.
    \Here is a general idea:

    As a Child:

    Phenobarbital
    Tegretol

    As an Adult:

    Tegretol
    Tegretol & Dilantin
    Tegretol & Neurontin
    Tegretol & Lamictal
    Dilantin
    Trileptal & Dilantin
    Trileptal & Depakote (severe stomach/groin pain)
    Trileptal & Topamax (severe stomach/groin pain)
    Trileptal & Zonegran (severe stomach/groin pain)
    Trileptal & Keppra (severe stomach/groin pain)
    Trileptal & Lyrica (bloating / weight gain)

    ************************************************** *********************

    After trying various meds & med combos, my neurologist suggested surgery. I've had several of the phase I tests. But I'm not sure if I want to go under the knife. I keep thinking of the 1% that have complications during surgery. My luck is non-existent!

    What treatment would you get? If you had any of these done, what was the outcome? Did you have any complications, what were they? Are you the same person (minus the seizures)?

    Please help me try to decide.
    Treatments
    Trileptal. In the testing phases of possible surgery.
    Location
    NYS
    Interests
    See hobby thread. :)
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    Member of the Epilepsy Foundation.
    Undiagnosed sufferer of Dysgraphia.
    My RFD LEGO Site & My RFD Store

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  • Join Date: 07-09-2007
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