Conversation Between Cinnabar and Elaine H

Hi Laurie

Hope you are ok mate and feeling better? I've put my "Ballad Of The Big Girls Blouse" poem on the creative writing page, and a serious one that I wrote for an old friend that lost her father, just to prove I can write seriously sometimes.

All ok with me I think, although I found myself to be wearing soaking wet trousers this morning, and I have no idea how or why!!!! All I know is that they were fine when I put them on after my shower!

Hope all is good with you?

Cheers

Elaine x

Hi Laurie

I hope I'm doing this right and that you get my messages, I am trying to sus it out but I am the true technophobe.

I hope you are doing ok, and haven't had any seizure problems? I have had a couple of really bad days, but I put it down to stress as I'm so worried about the op on 26th June. I am dreading that moment when Mark has taken me down to London, and then has to go and leave me, I just hope that when I next see my darling man that I recognise him, this is what I am terrified of, I just want to wake up and be rid of my seizures for the rest of my life!
I have actually applied for a job today, it doesn't start until September, and it's in the next village to where we live, I could almost walk there and back, it's just to work on the reception of a vetenary practice that is due to open up, it would be ok I guess, we'll see, I have to get back to work soon, I am no good being stuck in the house all day, I'm sure you know what I mean? What did you do for a living when you were working?

Thanks for your kind comments on my poetry, I really only do it for fun, but it's something I've always done, I'm trying to write in different styles, a friend of mine is in a writers guild, and has had a lot of stuff published, he suggested that I try some different styles, but I guess I'm just so used to the way that I write, I have done some serious poetry, but I think it's fun to laugh at life! I love your work too, I just haven't had a chance to get on and put any comments on there, I don't really feel qualified to say anything about people's work, it's such a personal thing isn't it writing? I just enjoy it.

Anyway, I hope you are ok, it would be great to hear back from you soon, and keep me in your heart on 26th June? Many thanks.

Love & Best Wishes

Elaine x

Hi Laurie

Hope all is well with you? I've had a weekend of seizures, I had two in the pub yesterday, my darling Mark looked after me bless him, God how embarrassing, I always say it's not me that suffers with epilepsy but the folks around me, I'm not usually there if you know what I mean? I just sometimes can't get out of a place quickly enough once I know what I've done, it doesn't bother Mark, he is brilliant, I guess being a paramedic is pretty useful, my dad has always said that he was Heaven sent!

I hope you have been ok? I am dreading next week, I go in on the 25th and the op is the 26th, I just want to get it over and done with, and get a complete cure, I will keep you posted. I've put another poem on the Creative Writing Page, it was something I wrote for a mate who had to scatter her dad's ashes, this was a few years ago now, I must try and write something for my dear mum, I've been thinking about her so much just lately, she is in my heart, and will certainly be with me next week in hospital, it was mum's persistance with the doctors that got me the surgery, and all she ever wanted was to see me seizure free and back on my feet again, and I am so determined that this will happen.

Keep it all crossed for me won't you, and I hope to hear from you again soon.

Best Wishes

Elaine x

Hi Laurie

First of all, thankyou so much for your kind words on my poems, Ive always written, and until I put some stuff on poetry.com, I'd never really had any feedback, so thankyou so much, I just write from the heart, some things I feel so strongly about, and I just have to put pen to paper.

I have had a date for my surgery this morning, and on Wed June 25th 2008, I am admitted to The National Hospital for Neurology & Neurosurgery. I'm absolutley cr--ping myself now that I have a date, but I have waited so long for this that I can at least plan my year, and hopefully look forward to leading a normal life again, and getting back to work.

I am gonna try and put something serious on the writing page, but as I'm always the joker, it may be difficult to find something, I counted 75 poems that I've got in a folder, all typed up and with artwork, some of it goes back to the 1980's. Thanks again for your kind words, and I'll be in touch again soon, take care!

Cheers

Elaine x

Hi Laurie

Hope you had a good day, I've been writing essays in a desperate bid to finish my course work in Epilepsy Care and Management, I have until June 28th to finish it and get it posted off for asessment with Leeds University. I have three essays left to write, and they are about how to have a social life with epilepsy, and how to participate in sports activities, and generally live a healthy life. I don't think having epilepsy has stopped me from doing anything sporty, what about you? I'm not as sporty as I was in my younger days, but then I didn't have epilepsy until I was 23 years old! I've been working on this course for four years, I just hope I get a decent result, not sure how they mark it, but to be honest I'll be really glad to get it finished, I find it so difficult to concentrate on stuff!
I hope you had a good day, and would love to hear from you again soon.

Cheers

Elaine

Hi Laurie

God, it doesn't get any clearer how to get the hang of this website, I'd hate someone to write to me and think I hadn't bothered replying, I always reply as long as I know how to.
Well, it is 11.45 am, it's Sunday, and true to form, as it's a bank holiday weekend, it's persisting down with rain! God the weather so decides my mood for me, Mark is at work, he's a firefighter so he works funny hours, I'm going to a barbque this afternoon, should be fun sitting in the garden with a wet sausage!It's a crowd of people that I've been friends with for many years, and it's always great to get together with them, it's like one big family, Mark will come round when he's finished his shift.
I'm glad you liked my poem, tht's the most recent one, I have sort of done one for my dear mum, I lost her just before Xmas, but I usually end up in tears when I put pen to paper, I'll get it finished, still a bit raw if you know what I mean?
Not sure if I told you or not, but last week, it was National Epilepsy Week here in the UK, and I can honestly say, there was more coverage of National Shed Week a few weeks ago, and what the great British family keep in their shed!! I was so angry, I managed to get my local BBC radio station to interview me, but I wasn't on for long, and it just makes me so mad that Epilepsy gets so little exposure in this country, I think people think it's easier not to mention it, and sweep it under the proverbial carpet.I've never been scared to discuss it with anyone have you? I was more than happy to stand up and talk in The House of Lords and The Commonwealth Institute in London, and tell everyone about all the ignorance and prejudice I'd experienced especially in the workplace, I think because epilepsy sometimes affects people with other conditions like Cerbral Palsy and Downs Syndrome, people think we are all the same, and that we are all lkiely to fall on the floor shaking and foaming at the mouth. What's it like where you live, is it a bit more understood, let me know, I'm very interested to know how other countries deal with it.
Anyway, I had better go and get my self tidied up and sorted out for the barbie, hope you are ok, and I hope to hear back from you soon.

Cheers

Elaine x

Hey Elaine - Was so happy you posted your poem. Hope I gave it the rave it deserved! Tonight I'm all tied up in a knot about my insurance situation which is threating my meds. I never thought I'd post in The Padded Room" but I let it all out. A comment was made about my political reference and nothing about the heart of my matter. I'm sure she ment no harm as she seems like such a nice person but Ouch! Here's a question? When posting to "Contacts and Friends" is that kept private from the rest of the Forum? Do you know? I think under "Private Msgs" it should be. I see my posts just about everywhere! But I think that this is the first time I've posted Pvt Msg - Always - Laurie

Hey Elaine! Hope you enjoyed that red wine last night. Next time raise your glass and give a "cheers" for me. Because I'm on so many meds for Bi-Polar and now Epilepsy I have to refrain and I really miss it! I tried some wine (just one glass) this year and got so loopy ^&%*&%$! Hope you can check out my poem "THE 6:45" my Room or whatever they call it! You appear to have a lot of depth and would love for you to post one of yours - and hey even if it's light hearted. I'd like your opinion. Do you think my work is too dour to post here? I can't help it. My subject matter is a product of what I've been a product of. Talk with later - Love - Laurie

Hi Laurie

Thanks for getting back to me about your wonderful creative writing page, I'll put a couple of poems on there when I get five minutes. I think we are friends now eh? I'll get the hang of this web site, but isn't it truly wonderful, to be in touch with people who simply understand each other?
I have a large red wine calling me, so I'll get my poem on here a bit later.

Cheers
Elaine x

Hi Laurie

I have just tried to put a poem on your creative writing page, but it wouldn't let me, well, I didn't put the poem on there, I just asked for help to put it on there, duh! What a dipstick I am, I know what I know with computers, but when it gets technical, forget it!

I'm so glad you got my last e.mail, I stumbled across this bit by accident, so apologies for not replying earlier, I also think I asked for you to made a "friend" but God alone knows if that worked. It's cool that we share a love of music, I also like writing lyrics, and singing, I doa lot of harmony stuff, and have won a few karaokes in my time, you can't stop me once I get a microphone in one hand, and a glass of red in the other!

I hope to hear back from you re the poems, and I'll put a couple on there, would be great to hear what other people think of them. I'm going out to make the most of the sunshine today, so catch you later.

Cheers

Elaine x