Epilepsy Forum - View Profile: Dutch mom

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Showing Visitor Messages 1 to 10 of 18

04-19-2012 10:14 AM - permalink
nicholasscott21

hope all is well
Nick
02-18-2012 04:38 AM - permalink
Chaz1

Hello Dutch Mom, thank u so much. I will take a good look at SOS-MIES. I think it’s about time I look for some voluntary work in the E front. It’s time to give back a little. I do work fulltime but I would love to make time to do something that counts.. Would you have any suggestions?
02-15-2012 01:29 PM - permalink
Chaz1

hello Dutch Mom, English is my 1st language (Irish) but I speak and read Dutch 100% but minimal writing. thank u so much for the welcome. You have been on this forum a long time now? so nice to meet u....Mothers in Arms :-)
01-11-2012 09:39 AM - permalink
GrlCalledLauren

The diet is more of a modfied atkins, i'm on it because the doctors can't get me into prescribe my anti-epileptic drug's yet. I won't be on the diet forever just until I can start taking medication. My diet follows pretty much the same as a person with type 2 diabetes would: a lot of meat, very low carb content. For children ketosis diets usually start in the hospital. I can give you options of the kind of meals I make; but each diet is different so my diet might not be yours. However, if there's any way I can help I will give you as much information as I can
10-30-2011 07:03 AM - permalink
Paorrin

We tried but she refused to stay on the diet. It was very hard when my other two kids would eat one thing and she couldn't. We tried diffrent meal times but that didnt work. She is a very stubborn and lovable girl.
07-22-2011 07:09 AM - permalink
APinsley

Hi, Thanks for stopping by, lets be friends.
07-16-2011 09:20 AM - permalink
NeuroNotes

Thanks for stopping by. =)
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01-21-2010 09:59 PM - permalink
epileric

Love the eyeball pic in your profile....... Veeery cool-you've got a great photographer in your home!
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10-16-2009 09:22 AM - permalink
Ruth

Story trails, we have started a something new named that. It is fun! I have signed up for it. I hope you will to. Ruth
10-16-2009 03:39 AM - permalink
Ruth

Hi, I wanted to let you know that a new poem has been written that is dedicated to all members of the Creative Writing Page. A New And Wondrous Sun.

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About Me

About Dutch mom

Seizure Background

My 12-year old (born July 1999) eldest (special needs) son was diagnosed with Lennox Gastaut syndrome and is double handicapped due to post-natal braindamage. He is succesfully on the ketogenic diet since June 2004 and is med free. Since 2003 I'm one of the moderators of a Dutch parent support group with a forum for parents of children with a difficult to control epilepsy and children diagnosed with one of the known childhood epilepsy syndromes. I am honoured to be a moderator on the CWE team, it's a great place to be.

Treatments

tried >10 AED without succes. Since 2004 succesfully on the ketogenic diet and since 2005 AED free

Location

The Netherlands

Interests

Being happy doesn't mean everything is perfect,it means you have decided to look beyond imperfection
Signature
Mom to an 12-year old boy with Lennox Gastaut Syndrome; on the ketogenic diet since June 2004 and AED free

Being happy doesn't mean everything is perfect, it means you have decided to look beyond imperfection.