About Me
- About Dutch mom
- Seizure Background
- My 12-year old (born July 1999) eldest (special needs) son was diagnosed with Lennox Gastaut syndrome and is double handicapped due to post-natal braindamage. He is succesfully on the ketogenic diet since June 2004 and is med free. Since 2003 I'm one of the moderators of a Dutch parent support group with a forum for parents of children with a difficult to control epilepsy and children diagnosed with one of the known childhood epilepsy syndromes. I am honoured to be a moderator on the CWE team, it's a great place to be.
- Treatments
- tried >10 AED without succes. Since 2004 succesfully on the ketogenic diet and since 2005 AED free
- Location
- The Netherlands
- Interests
- Being happy doesn't mean everything is perfect,it means you have decided to look beyond imperfection
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Signature
- Mom to an 12-year old boy with Lennox Gastaut Syndrome; on the ketogenic diet since June 2004 and AED free
Being happy doesn't mean everything is perfect, it means you have decided to look beyond imperfection.
- Mom to an 12-year old boy with Lennox Gastaut Syndrome; on the ketogenic diet since June 2004 and AED free
Contact Info
- Home Page
- http://www.sos-mies.nl
- This Page
- http://www.coping-with-epilepsy.com/forums/members/dutch-mom/





Ruth