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Elaine H Elaine H is offline

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Showing Visitor Messages 11 to 20 of 99
  1. drarvindr
    07-05-2010 03:00 PM - permalink
    drarvindr
    doing well.... seizures are gone .....for now. Otherwise ok. Job , love life ,family etc
    catch u l8er
  2. RanMan
    05-27-2010 12:32 AM - permalink
    RanMan
    Hi Lainey, havn't heard from you in a while. How's the book comming?
    Had any "wobblies" lately?

    I've been having these really weird auras lately. For the last couple of weeks ~ in the evenings if I'm watching TV I imagine that I see spiders running accross the floor in front of me. It really creeps me out (but I keep it to myself or my wife thinks I'm nuts.

    Anyway, don't know what it's like there but here in Hamilton, Ont, Canada we are in the middle of a massive heat wave, temps. in celceus are 29, 29.31 so far.

    BTW ~ is the Iceland volcanic ash affecting your weather?

    TTFN Randy
  3. Rocket Man
    05-17-2010 09:40 AM - permalink
    Rocket Man
    Hi Lainey. I've just spotted your message about a BBC radio show about your epilepsy. When did you do this, and which radio station was it?
  4. RanMan
    05-05-2010 01:18 AM - permalink
    RanMan
    Re: Your PM to me that was cut short b/c too many characters, why don't you send me an e-mail instead and that way you can say as much as you like.
  5. RanMan
    05-05-2010 12:42 AM - permalink
    RanMan
    Happy Birthday Elaine.
  6. Bernard
    05-04-2010 09:05 AM - permalink
    Bernard
    Happy birthday Elaine!
  7. RanMan
    05-01-2010 12:50 AM - permalink
    RanMan
    Hi Lainey,
    What's new with you on the job front or volunteer front?
    I know that I told you on FB that I was doing great but the reality is:

    Although my "seizure activity" (notice I didn't say epilepsy) has been 95% controlled since 1979, for the last 2 weeks I've been having this really strange aura.
    Every evening starting at 7:00pm all I can smell is stale cigerettes and nobody smokes in the house. It has really been bothering me, and also giving me headaches.

    As well, for about the past year I constantly have "neoropathy" (tingliing and numbness in my fingers and toes).
    My neurologist says this is from long term use of the meds (Duh ~ do ya think?) and cannot be reversed.
    I also have terrible mood swings (I'm having one now) and very poor balance, co-ordination and gait, slurred speach, ED (lots of fun there)

    Other than that, I'm fine. LMFAO

    Randy
  8. Elaine H
    04-25-2010 04:37 AM - permalink
    Elaine H
    Hi Emily
    I've not been on here for a while, we've had the most unbeliveable weather here for the last 10 days or so, and I've been in the garden, working out, trying to get in shape for the Summer, I can't bear to be indoors in the warm sunshine. I hope all is well with you? I've had a few wobblers, but it is so much better lately, I am however having some well weird dreams, and I sit and Tell Mark all about them the next day, he can't believe when I tell him, they are totally bizzare, but that's the Hippocampus for you??!!
    I may have a job soon, I'll let you know what happens, it's a Recruitment Consultant position, may start temp and go perm if they like me, I worked as one for years before, but I am terrified at the thought of going back to work!!
    Enjoy the sunshine, and talk again soon, keep in touch won't you?

    Lol

    Elaine xxxx
  9. Emilyjh5
    04-17-2010 10:58 PM - permalink
    Emilyjh5
    Hey Elaine,
    I just wanted to say hi considering it had been a couple of weeks since I have been on here. I hope your weather has been ok, the weather here where I live has been great the last couple of weeks. I hope you have a nice week coming up!
    Em
  10. BuckeyeFan
    03-28-2010 07:39 AM - permalink
    BuckeyeFan
    Hi Elaine - May the 4th be with you as well.
    I have not been on here a lot lately. My mother is ill with cancer and that is keeping me busy. Work is also giving me plenty of hours, but nothing I can't handle. There are positives in my life like my new little granddaughter born before Christmas (note my new pic). My E is being good to me which is good during this busy and stressful time.
    Good to hear from you!

About Me

  • About Elaine H
    Seizure Background
    Diagnosed in 1986 aged 23! Forceps delivery caused the problem, parents divorce & stress triggered first seizure. Had one lot of surgery 2000, clear for 5 years, it came back with a vengeance. Waiting for a 2nd lot of surgery, again on right Temporal Lobe. Writing a book about my epilepsy.
    Treatments
    Keppra 1,000mg x am, Oxcarbazepine 900mg x am 900mg x pm, Zonisamide 150mg x am 150mg x pm Clobazam (for cluster seizures only) 10mg x am 10mg x pm
    Location
    Northamptonshire, England
    Interests
    Collect antique cameras, I write poetry,I love world travel, anything to do with the human brain

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  • Last Activity: 02-02-2012 07:45 AM
  • Join Date: 03-30-2008
  • Referrals: 1

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