Hi All

I really just wanted to say hi, and I hope that after my surgery next Thursday 26th June, I remember who I am, let alone all you guys!! I'm sure I will, my surgeon assures me that my memory won't be any worse than it is now, (that isn't possible!!!!) I just wanted to say thanks for all your good wishes and it has really helped me to know that you guys are rooting for me, and that you understand and care. Last time I was out of hospital after about four days, so I will be in touch with you as soon as I get home, I keep looking out the window at my rusty old car and wondering if maybe in 12 months time, I could jump in and take her for a burn out!! (well as much as you can burn out in a Rover mini metro 1.4 GSI!!!)
Keep it all crossed for me mateys, and I'll be in touch when I get home.

Loadsalove to you lovely people at CWE XXXXX

Hi Elaine, to start a new thread in the forum, click on the red 'Epilepsy Forum' link at the top of the page. You will see a list of forum 'rooms'. Select the most appropriate forum room and click on it. You should then see a button at the top left that says 'new topic' just above the first thread/topic in the list.

Hi David

Bless you for replying to me, thanks for your kind words. I am trying to keep positive and be brave, my dear mum would have wanted that, and I know that she is with me in my heart, and will be in hospital too.

I just hope like you said, that the surgeon's hands are steady and careful, it is so delicate isn't it the human brain?

I'll keep you posted as to how I get on, I have a friend coming to see me tonight, and as Mark is on nights tonight and tomorrow, I will be very glad of her company!

I'll be in touch before I go in next Wednesday, have a great weekend, and loadsalove to you!

Cheers

Elaine x

Elaine, We are all stressed especially when comes to surgeryit is very scary even if it is the second time. You need to be patient with yourself and the doctors because any surgery is scary even if it is small. But, in your case this can be delicate so you just pray that god will guide their handsand are able to help you.Hang in there and don't give up.Remember have faith always.
GOD BLESS YOU,
David

Hi David

Good to hear from you! I could be a lot better, but I am trying to keep smiling and positive about next week, I am absolutely terrified that I am gonna wake up in recovery, and not know who I am let alone anyone else, that is my biggest fear, I know the doc said that my memory wouldn't get any worse than it is now, but I am a bit of a glass half empty person, and I am just so dreading something going wrong, it's such a delicate and precious part of the human body isn't it? I know my long term memory should be ok, but I am just worried about short term.

I have had a couple of bad "wobblers" as we call them lately, I had one outside my local pub the other day, that was embarrassing, we were sitting outside with some friends, I have no memory of it, and I had no warning either, which is a bit worrying, I feel a bit wobbly today, so I won't be going very far that's for sure, not on my own anyway. I have been feeling a bit like a prisoner in my own home just lately, all I really want to do is book a holiday to Egypt for Mark and I, and clear off to the sunshine, it's grey and miserable today, and the weather really does affect my mood, do you find that? I am a different person in the sunshine, I think most people are, it was lovely yesterday, we just don't get consistently good weather in the UK, and when the sun comes out, we all run into our gardens.

It's good to know that I am in your thoughts, I think a lot of people will be thinking of me next week, which is an absolutely wonderful comfort, I know my dear mum will be with me, I lost her just before Xmas, and she pushed all the way for me to get this surgery, last time and this time, I just know she will be by my side. I will of course let you know how I get on, I think last time I was only in hospital about 4 or 5 days, I'm not sure, but I will be in touch.

Thanks again for your kindness, and I hope all is well with you? Keep in touch.

Cheers

Elaine x

Hi Elaine,
How are feeling today I hope everything is going well. I wanted let you know you've been on my mind lately because of everything your fixing to go through. I went to my appts. yesterday and I think I could do their job especially my local neurologist who's not very bright! In a couple of months I will fly back to Dallas and talk to a real doctor that cares for his patients and has good bedside manners and respects your opion. I justed wanted to let you know how things are going and I hope everything is well with you. I will be praying for you
David

Hi Elaine,
Thanks for the messag and yes I have struggled all my life. Byt you see I'm fortunate I have singles group at church that is my family, since my own family doesn't help me or support me. And I have gone right temporalobectomy in 2000. and I under stand everything you tell me. For the last month I've been caged up inmy apartment because of the sweltering heat! I am very sensistive to weather changes. It can cause me to have migraines and seizures. Get back in touch.
GOD BLESS
David Hair

Hi All

I am still trying to sus this website out, and as much as I have enjoyed the short time I've been here, I just hope I'm doing it right, and replying to everyone, I'd hate anyone to think I hadn't bothered to reply.
I'm counting the days to the 26th June, still so many many emotions going round in my head, I want my dear mum, I want it to be here and over with, I want to turn away and run and hide, I want it to cure my seizures forever, I want to jump into my little car outside the lounge window, and drive off into the sunset!! Can you guys understand that? I have always said that I regard myself as extremely fortunate to be in the position of being offered brain surgery, and a possible end to my seizures, there were so many folk I was in hospital with that are stuck with it forever, and cannot be given this option, I would be very ungrateful to walk away now wouldn't I? But I'm so scared, I couldn't bear to look at my beautiful fiancee after the operation, and not recognise him, or have any memory of our wonderful 9 years together.
Please keep everything crossed for me folks?!

Loadsalove

Elaine x

Hi Elaine H ,
How are you I haven't heard from you lately. I thought I would drop in and say hello. I am still struggling to make my life work with out paindoctor, and local neurologist that will take me! and now I don't what to do anymore! This is really getting to suck!!! I never heard of dr.s' being afraid of their patient just because of a medical condition. But, I am here to find out how you are doing?
Because you are such asweet lady and wonderful to talk to .I hope you have had achance to read the poems in handwriting thread. Be praying for me the next several days that I find a doctor soon! I hope to hear from you soon.

GOD BLESS,
David Hair

Hi All you lovely CWE People

I just this morning, about an hour ago, got my date for my second brain surgery in London, so keep it all crossed for me on Wednesday June 25th. God I was shaking when I opened the envelope, I have waited so many months by the letterbox for this letter, I was crying and shaking as I read it, so many different emotions running through my head! My dear mum would be so pleased to know that I have finally got a date, I rang my partner Mark, and my Dad, I was shaking as I told them. Please please keep it all crossed for me this time? It's just gotta work, even another five years seizure free would be worth the pain! Love you all, you are truly brilliant people!! and I hope I can share my journey with you all!!

Loadsalove

Elaine xx