Joined the Party
- About graceface
- Seizure Background
- Just thought id identify a lil about who i am before I rant about my epilepsy, I prefer that people see my epilepsy isn't ALL of who I am soooo....
Me: Im a 23 soon to be 24 yr old girl livin in Freo on the West Coast of Australia. The town I'm in is super artsy and close to the beach, lotsa ppl cruise around on their bikes which suits me and my green bike "gerdy" great cos i can't drive :). I'm passionate about the arts as you can see in my interests section. Came here to find people who are similar to me in age and interests or just experiences- E can make me feel pretty lonely despite having great friends n fam... okey pokey so my background....
I've had seizures since I was 14 years old.
Grand Mals and partial seizures but my pre seizures are also strong enough for me to have to lie down. Took Epillim and increased dosage over 6 years- it didn't manage my epilepsy. Stopped medication when doctor wanted me to take another medication with the Epillim which "side effects" were suicidal behaviour and depression. Felt the side effect wasn't justifiable and felt continuing putting a chemical (epillim) in my body when it wasn't changing anything was pointless. Tried a variety of alternative therapies. Have been off for work and uni the last 8 months, lifestyle is very limited, hoping to find a treatment that works and allows me to live a normal life without too many side effects. Of late condition worsening not sure what the next move is in managing my condition maybe ill discover something on here :)
- Have tried some medication and various alternative therapies
- Fremantle, Australia
- All things creative- theatre,music, fashion, circus,dance.Op-shopping, silly shenanigans