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Jac's mum Jac's mum is offline

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  1. Aodan
    03-10-2009 11:03 PM - permalink
    Aodan
    Hi mum,
    I'm Alison, Aodan's mum. He has Fetal Valproate too. We have a thread going called "Children with Fetal Vanti-Convulsant Syndrome", in The Foyer. There are so many different names for FVS, it seems its hard to keep up. Aodan's diagnosis is Valproic Acid Embryopathy. My guess is the docs are trying to keep us confused.
    I am SO glad the girls in the UK have managed to jump on those cows who make these drugs. They deserve to be locked up and the key thrown away. I wish we could do that over here.
    It is so nice to know that I'm not out floating in the Valproic Acid ocean alone. Some days in does feel like that-but the hugs sure make it easier.

About Me

  • About Jac's mum
    Seizure Background
    Became a Grand Mal epileptic at age 14 - the day after my first period. I am fairly well
    controlled but experience auras at times of stress and tiredness.
    Treatments
    Carbamazepine (tegretol) 300mg/day & Sodium Valproate (epilim) 3500mg/day
    Location
    Brisbane, Australia
    Interests
    I care for my disabled daughter, she has fetal valproate syndrome & spina bifida

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  • Last Activity: 05-04-2008 12:40 AM
  • Join Date: 02-17-2008
  • Referrals: 0

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