 joan |
Last Activity: Today 04:21 PM
Visitor Messages
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- Joan,
Thank you for your kind reply to my stress post! It was a very heartfelt response, and I needed that!
Take care of yourself. -Julie -
- You have such a lovely family!
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About Me
- About joan
- Seizure Background
- I am the Mom of 2 children with epilepsy. Genetic. Shocking to find out after them both "seemingly" fine the first 15 years of both their lives.
My son at 15 (he is now 19) had his first Grand Mal, JME. Hes on lamictal and IF he takes his meds does very well. He is also at a neurophycologist who found he has high intelligence with low memory. We are using therapy to help.. I was told his epilepsy was triggered by puberty. His EEG is clear epilpetic. He also has mild OCD and mild SID (sensory Intrgation disorder). He also has an odd birthmark on his chest. Rare bi frontal spikes & Waves.
My daughter is now 15 and it seems puberty is kicking in epilpesy for her as well. She has myclonic seizures (JME) and has started on lamictal as well. Her EEGs show inconclusive and the Video EEGS are not clear. We are waiting on the results from an MRI. SHe also has an odd birthmark on the inside of her arms. She shows no signs of OCD or SID.. but does show a few signs of natural b*tchiness : ) but we love her anyway : ) **
They have a cousin on their fathers side with Grand Mals as well. I am still trying to sort out all types of info and figure it all out. I will work on this. Lets consider it a work in progress.
11/13/2008
My kids both on lamictal and after getting used to it (several months) seem to do well on it. My son is the process of having his license evaluated, to see if he can continue to drive. He was also turned down by the Marines and he is heartbroken.
My daughter just on her 6th week of meds. Her myoclonics seem less but I do hope they stop all together. She seems to be taking it well and looks at it as a good thing as she can help her brother.
Phillip
started meds 1/2006
Jennifer
started meds 10/2008
Courage, discipline, fortitude and integrity can do a great deal to make a woman beautiful. - Treatments
- Lamictal
- Location
- NJ Shore
- Interests
- Live, Laugh, Love
