KAM |
Last Activity: 08-04-2008 06:09 PM
About Me
- About KAM
- Seizure Background
- At nine months old, I had a fever of 106. I went into a grand mal convulsion that lasted forty-five minutes and it left me paralyzed on the left side of my body for three days, it left scar tissue on the left temporal lobe. When I was young, I often had a sensation of what appeared to be butterflies in my stomach, I now realize they were petit mal seizures. When I was about 16, the complex partial seizures began. In my late twenties the seizures were out of control. I had petit mal, complex partial, and grand mal at this point. I also had severe migraines. I have taken Dilantin, Neurontin, Topamax, Ativan, Tegretol, Depakote, Klonopin, and Phenobarbital to name a few. In October 1998, I had a left temporal partial lobectomy with cortical remapping. The surgeon was Dr. Howard Landy from the International Center for Epilepsy at Jackson Memorial Hospital in Miami, FL. I have had only one convulsion since surgery (Feb. ’99). In May 2000, I gave birth to fraternal twins, very complicated birth but they are beautiful and healthy, my fever reached 106.9 and I did not have a convulsion! In March 2007 I am diagnosed with breast cancer, I went through chemo, had a double mastectomy, they removed lymph nodes, I’ll start radiation soon. After chemo, my period stopped and it appears that my auras have stopped as well.
- Treatments
- Dilantin 600mg per day 300/300, *Topamax 100mg as needed (*need to be careful!!)
- Location
- Jupiter, FL
- Interests
- Massachusetts General Hospital follows my kids development for taking Neurontin through pregnancy.