KarenB |
Last Activity: 01-01-2011 06:51 AM
About Me
- About KarenB
- Seizure Background
- My son (7 y.o) has epilepsy that is not responding to meds (so far has been through Keppra, Topimax, Tripleptal, Lamictal, and Depakote). The Topamax did control seizures for 3 years, but stopped working about 1 year ago. He has grand mal (tonic clonic) seizures -- these are not too frequent - usually once every two months, but he has had two in a month, and even a cluster of 3 in one day. These are almost always at night or shortly after awakening. He also has a sort of partial complex seizure (I hope I'm using the right term) in which he'll scream out two or three times, and then stare for about 10 seconds, and sometimes part of his body will twitch, or his fingers will rub each other. Even though these are brief seizures, they tend to knock him out -- he'll often sleep for one or two hours after this sort of seizure. He has these seizures about 3 times a week -- oddly enough usually in the middle of the week, and rarely on weekends. He have seizures for like three days in a row, and then go for about 4 days with none.