lisabdcat |
Last Activity: Yesterday 07:42 AM
About Me
- About lisabdcat
- Seizure Background
- I am the mother of a 19 year old daughter who was diagnosed with E 6 years ago. She has uncontrolled generalized grand mal seizures. She's been on many different medications in the past 6 years, none of which has worked for very long. This past year, she's been in the hospital ICU 5 times due to cluster seizures that just do not want to stop once they get going. She is currently on an experimental med in conjunction with a Boston hospital. Otherwise, she is a normal, healthy 19 year old trying to live a normal life within the restrictions she has.
- Treatments
- Have tried: Lamictal, Keppra, Zonegran, Mysoline, Felbatol, Dilantin, Depakote. Have used Ativan to stop seizures, currently have Diastate to use as the ativan was not effective.
- Location
- Lewiston, Maine, USA
- Interests
- She currently is on Dilantin and uses an experimental dose of Progesterone cream
