NosyNessa |
Last Activity: 08-11-2010 12:05 AM
About Me
- About NosyNessa
- Seizure Background
- When My son was 7 months old he started having seizures. The doctors diagnosed him with a form of epilepsy called 'west syndrome'. They immediately started a drug called ACTH (acthar gel). He reacted very well and they believe that we he had is gone.
However, he now has an umknown form of epilepsy. His EEG showed that his brain activity while he was awake was almost normal. But when he sleeps they believe that he is having seizures that cause him to stop breathing and are not visible to us. They have him hooked up to a sleep apnea monitor and we are giving him Topamax to see if it helps.
He is now almost 9 months old.