Aloha Ranman- I just figured out this portion of the site-well, figured out might be overstating a little. I do in fact still have seizures, but for me they are better than the side effects of the drugs. Now in all honesty I do take phenabarbitol at night (half dose) so that I get a better nights sleep therfore less trigger for seizure...that's the plan anyway. Right now I am doing pretty darn well, I haven't even had an aura in a couple of weeks. This is typical when I have been on pain meds for any time (bad back,broken arm, broken foot, you know the usual stuff) I think my husband sticks around just to see what else I can get myself into! Needless to say he makes sure I have plenty of medical insurance!!Hope your holidays were enjoyable and upright!

Hi Ranman

I'd love to be a friend! The more the merrier eh? I hope all is well with you, and that you are looking forward to Xmas and New Year?! Sorry to hear that you are freezing your nellies off over there, actually, I didn't notice whereabouts you are in the world?

We are off down south for Xmas to stay with my dad and his partner, so we are really looking forward to it, we leave tomorrow morning (Tues 23rd Dec) I'm not sure how long we are away for, but it will just be good to get away for a while. What are you doing for Xmas?

It will be great to keep in touch, let me know how you are doing when you get the chance and thanks for the friend request, it'll be fun!

Cheers

Elaine xx

Too much friggen snow ~ 25cm yesterday and 20 more expected tomorrow.
I need to move to AZ.

Today 08:07 AM - permalinkCQ
Hi Randy,

It must be hard to see your sister like that & knowing she will probably never get better.

Since coming on this forum I have learnt alot about epilepsy. My family do realise that my epilepsy won't go away & support me. My Mum always seems to know when I take a seizure (even a small one), guess thats mothers instinct for you.

I have a good neurologist who always encourages me to let him know if I have any kinds of seizures no matter how big or small they are. I also keep an epilepsy diary where I put any seizures I have.

I do feel that I am lucky because I don't have too many tonic clonics & my partial seizures are currently under control.

Sorry to hear about your sis. When I was in Ont. I had a neurologist that doped me up almost as much. It was more important to stop the seizures than to function in daily life. If her neurologist finds this acceptable, maybe you can help her find a new one.

Heeey, I know Hamilton. I'm originally from Ottawa. Actually thinking of moving back to Ont. within a couple of years.

Anyway I was going to ask how your sister's doing. It just occurred to me to mention that my GP gave me a few Ativan to take before bed but only if I feel like I"m going to have a nocturnal seizure. If your sis doesn't like taking meds maybe taking something when she feels she needs it would be more suited to her preferences. At least she'd be taking something to help control the E.

If you have any advice on how to go about helping yourself, once surgery has been done, and several different cocktails of medications do not seem to work, I would love to hear what you know! Stacey

Hi Randy. I often forget to check my messeges. I forget lots of stuff. I've been under a lot of stress lately, my daughter and grand kids just moved in and the holidays are coming. My partial seizures had returned about a month ago. My Lamictal was raised and they stopped. Stress is a trigger for me, but so far I've been ok. I am so happy to find someone here that I know from our other, tiny group.

Hey!
I've been on depakote, tegretol, dilantin, keppra, and topamax. Was allergic to all but keppra and topamax! I'm still on keppra and topamax. They also had taking valium to help but that was when I was FIRST having seizures and before anything was really set. = )
- Kate

Hi Meetz,
I taught guitar and drums to special needs kids.
Sometimes we'd be on the same lesson for 6 weeks.
It got so frustrating that I had to give it up.

Randy