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RobinN RobinN is offline

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Showing Visitor Messages 1 to 10 of 109
  1. Shannon123
    04-23-2013 11:28 AM - permalink
    Shannon123
    Smacking my lips or anything but im going for my wada test on tje 8 and my doc said i habe 11 % chance meds will work for me and they r recommending surgery i just ddon't. Know wjat my seizers r or not please. Help
  2. Shannon123
    04-23-2013 11:26 AM - permalink
    Shannon123
    Partial. Complexe. Seizers i am on vimpact and i was looking up all side effects. On the. Meds. There. Is. Nothing. On. Having. Almost. Real dreams. And. They. R. Not. Scary. But. Just. Weird and. I wake. Up just. Feeling. Tired. And my head. Hearts or sometimes. My actual. Neck hurts. And. Some times i will. Wake. Up in the middle. Of. The. Night i am feeling. Scared. Nd i see something. Im not sure if it is a ora. Or what it is it seems like it fades or something i can't. Exsplain. It i was diagnosed. Last year with partial. Complex. Seizers. When they hooked me uo to tje machines over nite i had 10 plus seizers i never new i had tjem i am so confused the only readon i new is because. My mom saw me smsking my lips t one point but i told her i wad fine and krep doung what i was doing but my mom has not seen me smsking my lips or doung
  3. Shannon123
    04-23-2013 11:15 AM - permalink
    Shannon123
    Hi my name is shannon. Im looking for help or answers i havr partial. Comokexe seizers wnd i am just so lost with wjat is going on is it my meds or am i actualy having seizers anr this site is actually hard topost on is tjere any one oyt t kg ere tjay could give me advisr
  4. petero
    11-14-2012 01:44 PM - permalink
    petero
    awesome - and collapsible for easy storage
    I guess it's easier than I thought
    I imagined they may have been lacquered to make them harder
  5. petero
    11-13-2012 12:59 PM - permalink
    petero
    I love those paper ornaments you made! Can you tell me how you made them?
  6. Janus
    10-17-2012 08:36 PM - permalink
    Janus
    I have been seeing more energy with amino acids. (protein building blocks) not probiotics. But also OMEGA 3's in a big way. Seizure have been down but I can not say it is because of these supplaments . I did, just today start having some auras but it stopped at that. Weird. It is closely related to depression with me. How is yours?
  7. Janus
    09-27-2012 12:31 PM - permalink
    Janus
    Hi RobinN, I like your posts I avoid flu shots and don't get sick. But you stated that you take vitamin D i am curious about that as i have been told i should take it. here in the pacific northwest we need it but in S. Cal don't you get lots of sun? and do we get enough from the sun? Also I am taking amino acids and i hear you want to take those on an empty stomach, is it ok to take them with coffee? do you know? Have a great day, Douglas
  8. jackier
    09-21-2012 06:24 PM - permalink
    jackier
    It sure has helped. I've learned more from you and this site than I have from all my doctors . Doctors just want to write a prescription & keep you coming back for more. ** I just got some liquid Calcium Magnesium tonight. I have been taking cal & mag pills but I'd rather do the liquid. Thanks again. Hope you're doing well & have a good week-end.
  9. jackier
    09-15-2012 02:49 PM - permalink
    jackier
    Robin, Thanks so much for all the info you have shared. I've learned so much from you-and it's all helping. It's so touching that you've done this for your daughter-it reminds me of my Mother-she looked after me as a child & still does today. She always believed my E was tied to my cycle-she kept a chart tying everything together. Of course drs back then didn't believe it. THANKS
  10. RobinN
    09-12-2012 10:27 AM - permalink
    RobinN
    My girl leaves this Tuesday to tour with Disney on Ice.
    I can't tell you how much I am going to miss her!

About Me

  • About RobinN
    Seizure Background
    Daughter age 14 when first seizure occurred on June 23, 2006
    Diagnosed with hypoglycemia
    Treatments
    tried Tegretol, Gabapentin, Lamictal Trileptal now med free, relying on nutrition, vitamin supplements and neurofeedback
    Location
    SoCA
    Interests
    I am an artist, my daughter is a figure skater
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    Robin
    Neurofeedback - Rebecca's Story
    Feedback Matters- blog
    Knowledge is power and knowledge shared is power multiplied.
    -- Bob Noyce

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  • Join Date: 08-02-2007
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