- About RTLn1984
- Seizure Background
- Complex Partial Seizures 1975 - 1984
RTL June 11, 1984
Seizure free since, except auras recently SPS
Medication free since June 1985
SPS seem to be getting worse/changing the last few years
Auras used to be a rising feeling in my stomach, in 2003 I noticed a tingling in my left hand during an aura, never gave it much thought, over time this tingling became a slight numbness and was moving up my arm the change was very gradual over a number of years, I also noticed I was salivating during an aura, the feeling in my stomach was also becoming more intense and moving up into my chest.
In 2007 I finally went to a Dr about it, he sent me for an EEG came back negative. Went for an MRI which showed how much brain was removed during the RTL I had no idea they took the whole temporal lobe region. I was also told that an aura is a simple partial seizure, didn't know that either.
The Dr wanted to put me on medication right away but I chose not to. Scared of the meds.
2011 the auras as I still refer to them have gotten even more intense, the rising in my stomach moves up to my chest then throat I feel the need to vomit, dry heaved some of the times depending on the severity of the aura. Back for another EEG still nothing, and another MRI no changes, got a referal to a epilepsy specialist, who was awesome and explained a lot of thing but could not answer the question whether the SPS will become a CPS, he explained some medication options.
I agreed to go on Tegretol (Carbamazepine)
Back on Tegretol 600mg a day, after 26 years of no meds. (Nov 22, 2011)
Still having seizures only 2 in the last 6 weeks, Dr. increased meds to 800mg, 400 twice a day (Jan 10, 2012)
Going off Tegretol as it is giving me nasty headaches and making me too tired, also isn't stopping the SPS, started on Lamictal, slowly increasing to 125mg 2 times a day. May 15, 2012. increased to 150mg am pm April 2013
- Lamictal 150mg am & pm