slglaser |
Last Activity: 05-22-2009 12:03 PM
About Me
- About slglaser
- Seizure Background
- I had my 1st gran mal seizure as a baby. However, after it was over I my muscles continued to clench and release. I was kept overnight for observation and the pediatrician put me on Phenobarbital as a precaution. In kindergarten they tried to take me off the meds since there had been no activity since. I ended up having a 45 minute long seizure and woke up in ICU 3 days later. Back on Phenobarbital. In 2nd grade I developed Petit Mal (Absence) seizures as well and Zarontin was added to the mix. 6th grade came and they tried to wean me again (I had outgrown the petit mal by this point). Didn't work and they eventually got me stable again. This time around on Depakane. I should mention that once I am taken off of a drug that has worked I am not able to go back on it. Not only will it not work, any of it's cousin drugs will also not work. Right before 9th grade they tried to wean me again. 3 week later I had a gran mal. For the next 4 years I was a walking zombie. Tegretol triggered seizures. I had problems with Dilantin as well. Milanton, Celontin, Depakane, Depakote, etc. I went through all the available meds. During this time I also developed other types of seizures as well. So in addition to the Gran Mal, I had Tonic Clonic and partial Tonic-Clonic and could go from one seizure straight into another. I averaged 2 seizures a month, sometimes 3. The worst was when I had 3 in one week, 2 of which were on the same day. I spent my 17th birthday in the hospital seeing if I was a candidate for brain surgery. However, I didn't pass the telemetry study since my seizures were generalized not localized. By this time I had been on Felbatol in varying dosages for a year as part of the experimental study. When I got out of the hospital the doctors presented me with 3 options. An experimental drug available in Canada, another experimental drug available in both France & Mexico, trying a different dosage of the Felbatol, or trying (again) all the drugs we already knew didn't work in various cocktail combinations again. I chose to try the Felbatol since it was already in my system. I had a seizure at the end of that week and have been under control on Felbatol ever since. That was October of 1992.
- Treatments
- 2400 mgs of Felbatol a day (2 600mg tablets 2xs a day)
- Location
- Los Angeles, CA
- Interests
- Married Nov. 1, 2008. I NEED information on Felbatol and effects during pregnancy!!!!