Coping With Epilepsy Seizure Study
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TeeTees TeeTees is offline

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About Me

  • About TeeTees
    Seizure Background
    I've had epilepsy since birth. When I was a few months old it did disappear, but came back to haunt me since I was about 3. They were quite bad and quite often when they started out, but fizzled out as the medication improved. I got to a point in my teens where I was only having a fit approx every 1.5 years, but over the past year they seem to have come back to haunt me. I'm now having a series of fits (1 a day for about 4 days) every couple of weeks. They happen during the night when I go to sleep, and I get awoken by the "aura", so I'm always aware off them happening. I get a kind of electric taste in my mouth, like licking the bottom off a battery, before they happen. In general they last about 20 seconds max, in which I'll get out off bed as I have a voice in my head telling me that I'm going to be stabbed if I don't move. The other kind of seizure I'll have is a more subtle one, where it just refers to the aura feeling, and a speed-up of the heart rate, and then it "fades" away.
    Treatments
    Carbamazepine (Tegretol), Frisium (Clobazam), and a herbal remedy (Epi-Still) only recently started 2 months ago.
    Location
    UK
    Interests
    Bodybuilding & Car Detailing

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  • Last Activity: Yesterday 01:27 PM
  • Join Date: 10-21-2007
  • Referrals: 0

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