Epilepsy Forum - View Profile: tinasmom

Visitor Messages

Showing Visitor Messages 1 to 10 of 42

11-12-2008 12:22 AM - permalink
Mom2many

Hallmark has lost pet cards...its so hard to lose a pet. I am glad she has you to help her through this sad time. I will contact you tomorrow after m
Mari's tests
11-11-2008 07:01 PM - permalink
Mom2many

Been thinking of you today, How are you? How is the family?
Hope your day was great. chat later tonight....
11-08-2008 05:30 PM - permalink
Mom2many

Hope Saturday is relaxing for you.
11-06-2008 02:38 PM - permalink
Mom2many

I am going to log on to the Foyer here today. I hope tonight goes super great for tonight.
10-13-2008 04:44 PM - permalink
zayzaysmom

OMG does your little one see dr inglace? I read your post and I am having the same problems with my son and that is who he sees. I am calling his office as I am typing, I am freaked out about the under 16 thing.
09-29-2008 10:58 PM - permalink
Mom2many

Hello I made it over here......now it looks like I will be reading a lot for awhile...LOL
Thank for inviting me.
09-22-2008 09:49 PM - permalink
tinasmom

I have been very busy. I just got back from an E conference in Dallas. I've had to send information to others and reading info that I have received. I've got a very busy schedule with meetings so need to get ready.
09-22-2008 09:08 PM - permalink
hawke86

Are you MAD at me? What did I do?
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09-21-2008 09:04 PM - permalink
hawke86

How are you doing tonight? I hope you had a good weekend. My weekend wasn't to good. I had three seizures. Two were on Friday and one on Saturday. I almost had another one today. Other then that the weekend was OK. I'm still tired from the seizures. I hope this week will be good for everyone. You're a good friend.
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08-18-2008 10:28 PM - permalink
hawke86

I didn't know stress could cause a seizure. I sure found out tonight stress can cause a seizure.
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About Me

About tinasmom

Seizure Background

My experience with Epilepsy started with my oldest daughter. Epilepsy runs in my ex-husband's family. When Tina was 6 years old, I started to notice seizures. At that time, she was put on Dilatin and Phenobarbital. Then she was put on Depakote. Her seizures were under control until she pretented to take her medication. When we found out that she was not taking her medication, I asked her why and she said that she wanted to be like other kids. I explained to her that she was like other kids and having seizures was nothing to be ashamed of. She started taking her medication again and we did not see any seizures until puberty. Once again her medications were changed. The seizures were under control until she reached high school and she started having breakthrough seizures. As an adult, her seizures came more frequent and worsened. Her neurologist sent her to a psycharist. They found nothing wrong with her. The neurologist continously changed medications and added medications. She finally became seizure free on August 3, 2006 when she died in her sleep from a seizure. My husband and I have adopted her daughter, who now has seizures. My hope is that someday they will come up with a cure for Epilepsy.

Location

Janesville, WI
Signature
Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal

"I put my hand in your hand so you know that you are not alone."