tinasmom

Weaving the Community Fabric

Last Activity: Yesterday 08:55 PM

Visitor Messages

Showing Visitor Messages 1 to 10 of 33

08-18-2008 09:28 PM - permalink
hawke86

I didn't know stress could cause a seizure. I sure found out tonight stress can cause a seizure.
- View Conversation
08-02-2008 11:27 AM - permalink
ashmstng

Hello Tinasmom!
I wanted to say I watched the video you posted and cant stop thinking about it or crying. It has touched my heart. I am sorry for your loss but stay positive like you are. You all are doing a wonderful thing for her and she will see that. Take care and stay strong. God Bless!
- View Conversation
07-26-2008 11:04 PM - permalink
tinasmom

The weekend is going good so far afer a long emotional week. Sorry to hear about your neighbors cat bothering you.
07-26-2008 09:17 PM - permalink
hawke86

How's your weekend so far? I have this one neighbor that has this cat that doesn't know how to shut up. I don't know if you have a neighbor like that. That stupid cat would be in my backyard purring in the middle of the night. I have told my neighbor about it and they still don't do anything about it. Other then me how are you doing? It's still very hot and humid here. I hope you have a good weekend.
- View Conversation
07-15-2008 08:53 PM - permalink
hawke86

How are you doing tonight? I hope you're haveing a good day.
- View Conversation
07-09-2008 08:19 AM - permalink
DAVE1967

Hi tinasmom , DAVE here I was diagnosed with E at the age of 14 months & now i'm 41 & living with my fiancee in KY . My meds are listed in my profile if you wish to see them . Sorry to hear about your daughter i'm not one for losing someone & when it happens my only way out of that is to writedown how I feel & let others share my letters / notes. Hope all is well with your new daughter . DAVE
07-08-2008 09:58 PM - permalink
speber

Any luck getting the PM's back in line?
- View Conversation
07-04-2008 10:17 PM - permalink
hawke86

Thanks.
- View Conversation
07-04-2008 09:09 AM - permalink
tinasmom

I had a good week. Just deciding what to do today for the 4th. Have a great day and I will keep you in my prayers for your seizures.
07-03-2008 09:15 PM - permalink
hawke86

How are you doing tinasmom? How was your day? You want to hear something funny? My dog is a scared of thunder. I'm doing OK,other then a having a lot of small seizures. How's your week been so far? Right now we're getting heavy rain fall where I live. We could use that rain. I hope you have a good night.
Hawke
- View Conversation

Page 1 of 4

Last »

About Me

About tinasmom

Seizure Background

My experience with Epilepsy started with my oldest daughter. Epilepsy runs in my ex-husband's family. When Tina was 6 years old, I started to notice seizures. At that time, she was put on Dilatin and Phenobarbital. Then she was put on Depakote. Her seizures were under control until she pretented to take her medication. When we found out that she was not taking her medication, I asked her why and she said that she wanted to be like other kids. I explained to her that she was like other kids and having seizures was nothing to be ashamed of. She started taking her medication again and we did not see any seizures until puberty. Once again her medications were changed. The seizures were under control until she reached high school and she started having breakthrough seizures. As an adult, her seizures came more frequent and worsened. Her neurologist sent her to a psycharist. They found nothing wrong with her. The neurologist continously changed medications and added medications. She finally became seizure free on August 3, 2006 when she died in her sleep from a seizure. My husband and I have adopted her daughter, who now has seizures. My hope is that someday they will come up with a cure for Epilepsy.

Location

Janesville, WI
Signature
Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal

"I put my hand in your hand so you know that you are not alone."