travel bug |
Last Activity: 02-06-2012 10:58 PM
About Me
- About travel bug
- Seizure Background
- I’ve had epilepsy since early in 2007 when a seizure sent me to the ER where I was diagnosed with a brain tumor. The seizure was (as far as I can figure from what I’ve read) simple partial motor onset, secondarily generalized. I was put on Dilantin which didn’t work well for me as I couldn’t maintain a steady level. I had a couple more simple partial motors which knocked me to the ground and left me helpless though aware of my surroundings. Switched to Keppra, 1000mg/day, which worked well until the fall of 2008 when I had episodes of a strange short circuit feeling in my head with phantom burning tire smell. I wasn’t sure if they were seizures, but went to my GP just in case. He increased my Keppra to 1500mg/day and sent me for an MRI a few months before I was scheduled to have one. It showed some new tumor growth and I was finally scheduled for surgery. My doctors were hesitant before due to the tumor’s location near the motor cortex. After surgery, I had frequent simple partial motor seizures, but they were far, far less severe and were preceded by auras which helped a lot because previous ones struck like lightning. Anyway, seizures were not only less severe, but steadily became less frequent. However, I still have sensations and various symptoms that could be seizure related, but I'm hesitant to add anymore meds if I can avoid it.
