Hi David,
I just got your message. I will be happy to share information with you about seizures and will go and read your posts in the padded room. Did you read the articles on my web page? If not, here's the link:
"Looking For Zoey"
http://www.indiana.edu/~pietsch/home.html#special

Talk with you soon!

Zoe

Hi Zoe,
My name is David hair I live in Odessa,TX. Robin told me about you and maybe you could help me. I've had epilepsy since I was 3 yrs. old I was diagnosed with partial seizuresthen they had they got it controlled by the time I was by the time I was 6 yrs. old. I hope we can be friends and I hope you will read my two entries in the padded room. Because I am working on abook to help others under stand the of epilepsy that also has many medical conditions.I hope you will get in touch soon
DAvid Hair

I didn't check in here Zoe for an answer, so today is the first day I have read this. Silly me. I guess it only notifies me when there is a new answer on my message list.

Looking forward to your cookies. I will look through my recipes, and send you my favorites. I would love to be able to make them again. I have found a few package mixes that aren't bad. If I don't make them too often, then we don't rely on sweets around the house.

Next week I am going to get back into walking, as I will have a new summer routine. I wouldn't mind having a coffee shop along the way. Guess I would have to come out of the park for that.

Rebecca still is seizure free. This is the rough time of the month, and she appears to be doing very well. I will take her this Thursday with me to learn how to do the NFB treatments. That will be interesting. I am technically competent so I am not too nervous. She was evaluated for constipation, but that doctor was ....wacko. Tried to tell me that going once a week can be considered normal. Told about a patient that was so far fetched, I was ready to run out of the room. As long as she is not in pain, he didn't see any problems with her symptoms. Told me to continue with magnesium.
Told me that all the new information coming out on Autism was just quackery. I never went back for a follow up.
Asked for medical research on: intestinal issues = neurologist issues
Asked me if my doctor agreed with the idea of seizure threshold.
It always is so disappointing to me that they can be so far out of the loop. I put far too much trust in that white coat.

My art has been on hold, while I have been painting every surface in this house. It is looking good and will be put on the market in about a week, then life will be rather interesting. A new adventure.

Need to run to carpool,
Take care of yourself. Hope that camera comes out soon.

Hi Robin,
Nice to hear from you. I will see an internist on Friday who should be referring me to the neuroscience institute and elsewhere. I'm trying not to get my hopes up about this. If I just get a confirmation that the spinal cord cavitation has or has not returned, I may just leave things as they are, do my own therapy and let nature take it's course. Throwing drugs at me would only make things worse. I've been in a lot of pain and this is difficult as I take no drugs. At the clinic they should also be getting me checked out for the lower spine injury and colitis stuff, which may be part of the spinal cord problem. It definitely feels like some kind of infection; if so, my chances of living and of the spinal cord healing again are much better than if this is rupture. I did write to them about the old and chronic bone marrow infection which may be what got into my spinal cord. Too many possibilities with all the damage to this poor body.
At any rate, the rest of life is going well here in Lexington. I'm having no difficulty meeting people, getting along. When I am feeling ok, I'm plugging away on my gluten free cookie book. What are some of your favorite cookie recipes? I'll adapt them to gluten free.
I'm doing some yoga and getting into my daily routine of walking a few miles, with a coffee stop along the way. I'll have a better idea of whether I'll feel safe to try and get any further medical treatment after seeing the internist Friday.
So tell me how are you, your family, and update me on Rebecca. Is she staying seizure free? Did anyone ever evaluate her for the chronic constipation? How about you? How is it going with your art? What else is going on with you? I'll try and check in on the weekend. Take care.
Zoe

Hi Zoe,
Hope life is settling down for you.
Do you like your new apt? Have you met with the medical team yet?