Coping With Epilepsy

» Navigation Menu

Starting Points

Community

Dedication

Reference

Cool Stuff

Bookmarks

» Random Album Pics

ziggidypoo
They always said 2 heads were better tha ...

ziggidypoo
REASON FOR THE SEASON

joey

Belinda5000
2008 05130016

tinasmom
Brother and sister

» Current Poll
What factors have helped you attain (at least some) seizure control?
AED Monotherapy (just one drug) - 30.95%
AED Polytherapy (more than one drug) - 47.62%
Diet (Ketogenic, MAD, LGIT, GARD/GFCF, MCT, etc.) - 30.95%
Sleep regimen (and/or CPAP for sleep apnea) - 35.71%
Neurofeedback - 11.90%
Neurobehavioral Therapy (or techniques) - 9.52%
Medical device (VNS, RNS, etc.) - 4.76%
Brain surgery (Lobectomy, etc.) - 7.14%
Other (explain below) - 19.05%
Total Votes: 42 You may not vote on this poll.
» View Poll Results » Comment On This Poll » This Poll Has 24 Replies

» Recent Threads
	RatingTitle, Username, & Date	Last Post	Replies	Views	Forum
	What makes you feel good? Loopy Lou Yesterday 07:31 AM	Today 03:36 PM by Meetz1064	13	65	Lemonade Stand
	Extreme heat & epilepsy ( 1 2) Hosea 06-22-2009 06:53 PM	Today 03:34 PM by feast	29	407	The Kitchen
	Why wedding dresses are white (joke) Battle between MEN -vs.- WOMEN ( 1 2 3... Last Page) TeeTees 05-23-2008 12:09 PM	Today 03:33 PM by Meetz1064	598	10,301	The Lounge
	seizues everyday for last 9 days stringbean Today 06:03 AM	Today 02:21 PM by BuckeyeFan	2	27	The Kitchen
	New and need advice KellyB Today 11:01 AM	Today 12:57 PM by RobinN	2	20	Padded Room
	Hi... sinke Yesterday 09:20 AM	Today 12:00 PM by Meetz1064	12	75	The Foyer
	I met President Obama Crystal11 Yesterday 12:58 AM	Today 10:14 AM by Crystal11	3	43	The Foyer
	I will never ask "What Next" KAM 01-25-2009 08:42 AM	Today 09:55 AM by Meetz1064	7	161	Padded Room
	TLE Sufferers? kish002 07-01-2009 11:48 PM	Today 09:33 AM by Bernard	6	63	The Foyer
	Osteomalacia and Medications feast 06-23-2009 07:29 PM	Today 09:16 AM by feast	12	108	The Kitchen
	A bit worried :( xmeganx 07-01-2009 02:36 PM	Today 04:16 AM by xmeganx	6	88	The Foyer
	daughter may also be having seizures Rhea Yesterday 09:52 PM	Today 03:25 AM by KellyD	3	23	The Kitchen
	To Those with memory loss, KathyJJ 05-20-2009 05:31 PM	Yesterday 09:27 PM by Rhea	15	221	The Kitchen
	How long have you had Epilepsy? ( 1 2 3... Last Page) brain 07-29-2007 05:23 PM	Yesterday 04:27 PM by garfieldlea68	106	5,710	Back Fence
	Getting to know you... ( 1 2 3) hawke86 05-24-2008 04:32 PM	Yesterday 03:59 PM by feast	40	404	The Lounge
	My uncle passed last week Cinnabar 07-01-2009 02:52 PM	Yesterday 10:58 AM by Cinnabar	14	68	Padded Room
	Hellooo sparkiesuze 06-26-2009 02:51 PM	Yesterday 10:45 AM by Loopy Lou	17	143	The Foyer
	Let's give it a name batman 06-11-2009 04:24 PM	Yesterday 10:41 AM by walksalot	8	137	The Kitchen
	My Seizure Medicine Has Been Recalled Shutterbabe 06-28-2009 07:57 PM	Yesterday 10:03 AM by Shutterbabe	17	176	The Kitchen
	You know you have epilepsy if... ( 1 2 3... Last Page) seizures4ever 07-20-2008 07:00 PM	Yesterday 06:46 AM by Jfpinell	108	3,602	Lemonade Stand
	Federal advisory panel ban on Percocet and Vicodin Birdbomb 07-01-2009 04:11 PM	07-01-2009 11:36 PM by BIGMAN131307	3	47	The Lounge
	Seizure on Tuesday and scared sinistergurlie 06-25-2009 11:38 AM	07-01-2009 10:29 PM by sinistergurlie	8	112	Padded Room
	Texan Roommate needed brainwavez 06-29-2009 06:08 PM	07-01-2009 10:10 PM by batman	3	56	The Lounge
	Nutritional Depletion as a Side Effect of Anticonvulsant Medications angel 01-06-2008 10:12 AM	07-01-2009 05:51 PM by feast	11	1,995	The Library
	CQ's Jokes ( 1 2 3... Last Page) CQ:) 08-23-2007 07:43 PM	07-01-2009 04:19 PM by CQ:)	411	14,121	The Lounge
	Abnormal Brain Waves from Ingestion of Gluten RobinN 05-12-2009 11:20 AM	07-01-2009 03:26 PM by RobinN	2	112	The Library
	Lamictal coupons Meetz1064 07-01-2009 01:34 PM	07-01-2009 02:01 PM by Nakamova	1	29	The Kitchen
	MAD - Modified Atkins Diet joan 07-01-2009 05:30 AM	07-01-2009 01:37 PM by joan	6	46	History Book
	nocturnal seizures and "seizure tracker" Melpier 07-01-2009 06:04 AM	07-01-2009 12:24 PM by epileric	2	39	The Kitchen
	Today in Rock n Roll history ( 1 2 3... Last Page) Heather 03-31-2009 12:05 AM	07-01-2009 10:58 AM by garfieldlea68	96	1,231	The Lounge
	Flu Shots ( 1 2 3... Last Page) alivenwell 07-22-2008 09:49 PM	07-01-2009 10:09 AM by todub	96	3,085	Back Fence
	anvarsy of gradad's death majormana 06-30-2009 03:20 AM	07-01-2009 10:06 AM by Meetz1064	4	51	Padded Room
	answers needed sourbubblegum1 10-28-2008 12:57 PM	07-01-2009 09:10 AM by Meetz1064	7	217	The Foyer
	How many different epilepsy drugs have you tried? ( 1 2 3... Last Page) Bernard 07-29-2007 03:38 PM	07-01-2009 08:47 AM by Belinda5000	76	5,011	Back Fence
	Impotence as a side effect of Topamax (Men's Issues) forward2007 03-17-2009 07:45 PM	07-01-2009 07:18 AM by BuckeyeFan	8	354	The Kitchen
	Worried. hawke86 06-20-2009 07:51 PM	07-01-2009 06:45 AM by KonradV	9	133	The Lounge
	Lamictal Rash / Allergies (Update) brain 03-17-2009 03:06 PM	07-01-2009 05:12 AM by joan	14	346	The Kitchen
	VEEG - How many have you had? (Video Electroencephalogram... brain 03-14-2008 03:15 AM	06-30-2009 06:52 PM by stilldancing_98	19	1,022	Back Fence
	Greetings! DayDreamer 06-29-2009 02:22 PM	06-30-2009 12:26 PM by Nakamova	3	65	The Foyer
	anyone else get skin tingling sensations ? vapour 06-22-2009 02:06 PM	06-30-2009 12:14 PM by RanMan	7	127	The Kitchen
	Cell Phones and Microwaves ( 1 2) alivenwell 07-23-2008 08:22 PM	06-30-2009 10:37 AM by Melpier	29	1,636	Back Fence
	Hi I new little fruitcake 06-29-2009 10:34 AM	06-30-2009 10:29 AM by little fruitcake	8	78	The Foyer
	Missed dosage / Forgot - Left at home or Forgot refill? ( 1 2) Hosea 05-01-2009 04:12 PM	06-30-2009 10:10 AM by carlasmoore	24	604	Back Fence
	Question?When or if a doc can stringbean 06-29-2009 08:10 AM	06-30-2009 10:02 AM by Cint	1	50	The Kitchen
	Tonic Clonic ( Grand Mal ) Seizures / Epilepsy brain 11-09-2008 02:36 AM	06-30-2009 07:30 AM by skillefer	9	1,308	Back Fence
	Medic Alert Bracelets - Do you wear one? ( 1 2 3... Last Page) Bernard 07-26-2007 06:12 PM	06-30-2009 07:23 AM by alex	180	10,300	Back Fence
	Memory and Cognitive Functionality and Issues brain 04-27-2009 12:39 AM	06-30-2009 06:13 AM by BIGMAN131307	9	317	Back Fence
	Epilepsy and Handwriting ( 1 2 3... Last Page) brain 05-11-2008 07:48 PM	06-29-2009 10:08 PM by Melpier	96	3,399	Back Fence
	Doctor & Medical Jokes ( 1 2 3... Last Page) brain 08-12-2007 07:03 PM	06-29-2009 05:56 PM by majormana	63	3,101	Lemonade Stand
	Here and there, hair is everywhere Cinnabar 06-28-2009 03:59 PM	06-29-2009 01:45 PM by Cinnabar	6	69	The Kitchen
	Sneezing setting off SPS k2s4ever 06-27-2009 07:06 PM	06-29-2009 09:23 AM by k2s4ever	2	52	The Kitchen
	Can nicotine from second hand smoke cause seizures? forward2007 06-28-2009 08:40 PM	06-29-2009 08:46 AM by Bernard	3	41	The Kitchen
	Back from Washington!!!! Crystal11 06-28-2009 07:39 PM	06-29-2009 08:25 AM by Bernard	3	46	The Lounge
	Going to the Dr tomorrow and adding Vimpat Junebug 06-10-2009 09:08 PM	06-29-2009 06:18 AM by Melpier	10	202	The Kitchen
	How many people practice ( 1 2 3) POSITIVEPERSON 07-29-2007 04:59 PM	06-28-2009 03:52 PM by feast	52	2,865	Back Fence
	Have You Been Denied Life Insurance ( 1 2) Junebug 01-15-2009 01:03 AM	06-28-2009 03:51 PM by stilldancing_98	22	639	Back Fence
	Psychosis Phidippus 02-10-2009 12:09 PM	06-28-2009 03:49 PM by RobinN	7	321	Back Fence
	Best Stress Releiver Music tedwins 05-14-2009 06:39 PM	06-28-2009 03:44 PM by epileric	2	173	Back Fence
	How many members have both Epilepsy and Sleep Apnea? ( 1 2 3) forward2007 04-26-2008 10:53 AM	06-28-2009 03:44 PM by forward2007	48	1,424	Back Fence
	ABSENCE SEIZURES including ATYPICAL ABSENCE SEIZURES / EPILEPSY ( 1 2) brain 11-09-2008 02:45 AM	06-28-2009 03:43 PM by feast	21	1,269	Back Fence

» Most Recent Diary Posts

Too many potholes in this road - Stacy had a single tonic clonic seizure today. This one was very unusual for her though - it occurred at noon while she was out in public (waiting in line at a restaurant) with friends. She fell and hit her head near the bridge of her nose - just under the right eyebrow - on [...]

Wouldn?t you like to go where everybody knows your name? - Stacy went status again last night. I administered Diastat, but it didn’t help, so I called 911 and back to the ER we went. I had been visiting with friends in the evening (rare night out for me), so I’m not sure if Stacy took her evening dose of Phenytek (300mg extended release Dilantin). [...]

Slow and steady wins the race - Stacy has only had about two small CP seizures since her TC last month. These CPs are very similar to absence seizures - very short duration and very short post-ictal period. She was back to normal from start to finish in about 15-20 seconds. Stacy is continuing her EEG neurofeedback sessions once a week [...]

Down, but not out - Stacy had a TC yestderday morning at ~8:00AM. She had gotten out of bed around 7 and used the restroom (she started her period). She was outside on the back patio when she fell to the ground and started convulsing. Fortunately, she did not sustain any major injuries from the fall or from [...]

Putting the genie back in the bottle (knock on wood) - I can’t believe it’s been two months since the last update. Time is really flying. Stacy has been maintaining her 400mg Dilantin, pseudo-LGIT diet, regular sleep schedule and EEG neurofeedback regimen - for the most part anyway. Some nights her sleep schedule slips and we’ve had some interruptions in the neurofeedback sessions thanks to [...]

» Online Users: 51
5 members and 46 guests

Most users ever online was 249, 06-23-2009 at 06:36 PM.

» CWE Store

Ringer T

Jr. Spaghetti Tank

Mousepad

» Certified

We comply with the HONcode standard for trustworthy health information:
verify here

All times are GMT -5. The time now is 06:10 PM.