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» Recent Threads
	RatingTitle, Username, & Date	Last Post	Replies	Views	Forum
	chinese man killed and ate childs brain to cure epilepsy vapour Today 07:33 PM	Today 07:33 PM by vapour	0	1	The Kitchen
	You know you have epilepsy if... ( 1 2 3... Last Page) seizures4ever 07-20-2008 07:00 PM	Today 06:15 PM by crazychick10793	397	12,749	Lemonade Stand
	*[Research]* Diary of an Epileptic ( 1 2 3... Last Page) Rae1889 01-18-2010 10:54 AM	Today 06:00 PM by occb	248	3,054	The Library
	How many different epilepsy drugs have you tried? ( 1 2 3... Last Page) Bernard 07-29-2007 03:38 PM	Today 05:27 PM by Inaara	109	7,813	Back Fence
	New To The Group normbeam Today 09:16 AM	Today 05:20 PM by Endlesssea	5	37	The Foyer
	*[Info]* Childhood Abuse and Epilepsy PhylisFeinerJohnson 02-06-2010 03:20 PM	Today 05:10 PM by PhylisFeinerJohnson	8	137	The Library
	*[Research]* New Brain Wave Therapy for Epilepsy, Pain, Parkinson's and More PhylisFeinerJohnson Today 11:30 AM	Today 05:06 PM by PhylisFeinerJohnson	2	19	The Library
	Please tell me all about Topamax ( 1 2) Endlesssea 03-07-2010 05:40 PM	Today 04:17 PM by Zoofemme	23	231	The Kitchen
	coming to grips SeizetheNight 03-14-2010 01:50 AM	Today 04:08 PM by Endlesssea	6	115	Padded Room
	Anyone smell cinnamon? JRuner Yesterday 10:56 AM	Today 03:24 PM by crazychick10793	19	111	The Kitchen
	Does anyone know what this kind of EEG is? tam bam Yesterday 05:09 PM	Today 03:20 PM by Rae1889	11	72	Padded Room
	*[Research]* Oh no -- here comes the sun ( 1 2 3... Last Page) occb 03-01-2010 01:07 PM	Today 01:02 PM by Rae1889	125	984	The Library
	Bone Density, Teeth, and AED's Endlesssea Yesterday 08:42 PM	Today 12:12 PM by Rae1889	4	42	The Kitchen
	Blood donation, employment enmassemauve Yesterday 06:11 PM	Today 12:10 PM by Rae1889	4	38	The Foyer
	feeling depressed 6 months of weird symptoms and no diagnoses ( 1 2) 400ex 02-15-2010 05:51 PM	Today 11:16 AM by 400ex	31	462	Padded Room
	*[Info]* Doctors Need More Training in Communication RobinN Today 09:40 AM	Today 09:40 AM by RobinN	0	16	The Library
	Hurts kyrissa 03-12-2010 02:50 PM	Today 08:31 AM by Zoofemme	10	125	Padded Room
	I am not your dog!!!!! seizingbeauty 03-16-2010 09:05 AM	Today 08:29 AM by Zoofemme	12	109	Padded Room
	Deeply discounted drugs without insurance PhylisFeinerJohnson Today 07:13 AM	Today 07:13 AM by PhylisFeinerJohnson	0	14	The Kitchen
	Would it be innapropriate... occb 03-11-2010 12:04 PM	Today 06:49 AM by Shelley	16	133	The Lounge
	Memory and Cognitive Functionality and Issues ( 1 2 3) brain 04-27-2009 12:39 AM	Today 06:44 AM by stilldancing_98	45	1,779	Back Fence
	Experience AURA or AURAS? ( 1 2 3... Last Page) brain 02-10-2008 03:09 AM	Today 06:42 AM by Mike	201	12,888	Back Fence
	Complex Partial Seizures / Epilepsy ( 1 2) brain 11-05-2008 12:51 AM	Today 06:20 AM by Ruth	39	3,757	Back Fence
	*[News]* Surprising Benefits of Biofeedback RobinN Today 01:14 AM	Today 04:47 AM by CleptaK	2	23	The Library
	Oxygen Therapy For Headaches ( 1 2) Birdbomb 08-21-2007 01:34 PM	Today 02:27 AM by Crystal11	20	2,148	The Library
	*[Research]* Neuroplasticity and neurofeedback Bernard Yesterday 05:06 PM	Today 01:06 AM by Meetz1064	2	35	The Library
	Mercy Beach Bernard Yesterday 04:51 PM	Yesterday 07:05 PM by Meetz1064	2	51	Riva's Memorial
	Eve's side of the story.... TeeTees 03-15-2010 02:23 PM	Yesterday 03:41 PM by Rae1889	9	84	The Lounge
	Don't Pinch Me little fruitcake Yesterday 05:16 AM	Yesterday 03:15 PM by occb	5	51	The Foyer
	Blonde Jokes.... TeeTees Yesterday 02:31 PM	Yesterday 03:02 PM by Nakamova	2	28	The Lounge
	Docs have messed me up BIG style.. video attatched vapour 03-16-2010 06:00 PM	Yesterday 02:54 PM by vapour	9	106	Padded Room
	Have you ever had a MEG / SQUID or Invasive High Tech EEG? brain 09-27-2008 11:12 PM	Yesterday 12:15 PM by Rae1889	4	699	Back Fence
	need "UP" music ( 1 2 3) seizingbeauty 01-26-2010 02:10 PM	Yesterday 10:38 AM by Inaara	51	779	The Lounge
	Have You Been Denied Life Insurance ( 1 2) Junebug 01-15-2009 01:03 AM	Yesterday 09:57 AM by C0urt	25	1,888	Back Fence
	What first triggered your epilepsy, if known? (i.e. first seizure) ( 1 2) Deb12345 01-29-2010 10:55 AM	Yesterday 09:47 AM by crazychick10793	29	660	Back Fence
	Eye flickering/contracti... rhiz 03-15-2010 03:10 PM	Yesterday 08:49 AM by Katarn112	5	80	The Kitchen
	I just need an answer from someone who knows! pgvh? 03-14-2010 09:29 PM	Yesterday 08:39 AM by Bernard	16	228	The Foyer
	"Bulging Disc" - more was found in the CT scan! Stinkpot 03-15-2010 05:04 PM	Yesterday 05:12 AM by Meetz1064	2	48	The Kitchen
	The lights are on but nobody's home Endlesssea 03-14-2010 08:29 PM	Yesterday 03:52 AM by Meetz1064	7	83	The Kitchen
	Vimpat, a new AED, has anybody else tried it ( 1 2) stilldancing_98 07-05-2009 10:15 PM	03-16-2010 10:23 PM by Meisterin	20	951	Lemonade Stand
	B3 Niacin brownstoned 03-14-2010 11:42 PM	03-16-2010 09:42 PM by hootie	4	72	The Kitchen
	Military waiver bally21 03-11-2010 05:54 PM	03-16-2010 08:25 PM by Inaara	8	139	The Foyer
	AED & Sex Drive ( 1 2 3... Last Page) brain 01-16-2008 08:29 AM	03-16-2010 03:20 PM by stilldancing_98	78	7,921	Back Fence
	Medic Alert Bracelets - Do you wear one? ( 1 2 3... Last Page) Bernard 07-26-2007 06:12 PM	03-16-2010 03:12 PM by moonchild1970	203	13,803	Back Fence
	See it in the eyes? Kare 03-15-2010 02:08 AM	03-16-2010 01:15 PM by Crystal11	4	77	The Kitchen
	Too Much Zoofemme 03-11-2010 07:22 AM	03-16-2010 12:46 PM by Zoofemme	11	108	Padded Room
	Alcohol BarryIreland 02-13-2010 04:40 PM	03-16-2010 09:26 AM by seizingbeauty	14	219	Padded Room
	Flu Shots ( 1 2 3... Last Page) alivenwell 07-22-2008 09:49 PM	03-16-2010 05:58 AM by Ruth	103	4,924	Back Fence
	Ahh My hair is falling out! ( 1 2 3) brain 10-19-2007 03:04 AM	03-16-2010 05:47 AM by Zoofemme	46	1,689	The Kitchen
	Sleep alivenwell 03-15-2010 12:07 AM	03-16-2010 02:28 AM by Meetz1064	6	87	Back Fence
	VNS Message Board Birdbomb 03-14-2010 02:17 PM	03-16-2010 01:04 AM by Birdbomb	2	50	The Bulletin Board
	My boyfriends stupid mother... ( 1 2) charliekins 10-29-2009 09:19 PM	03-15-2010 09:52 PM by Inaara	26	453	Padded Room
	Penguins.... TeeTees 03-15-2010 02:25 PM	03-15-2010 04:43 PM by TempusFugit	2	42	The Lounge
	*[Research]* Frontal lobe epilepsy research ( 1 2) occb 02-18-2010 12:50 PM	03-15-2010 03:48 PM by occb	32	400	The Library
	Epilepsy Related Conditions PhylisFeinerJohnson 03-15-2010 11:39 AM	03-15-2010 11:39 AM by PhylisFeinerJohnson	0	46	The Kitchen
	Update - looking at possible brain surgery ( 1 2) CQ:) 11-19-2009 04:01 PM	03-15-2010 02:43 AM by Ruth	25	429	The Laboratory
	Soooo frustrated and worried! JRuner 03-12-2010 05:40 PM	03-15-2010 02:18 AM by Endlesssea	6	85	Padded Room
	Steve Harvey blew it. ( 1 2) flinnigan 11-05-2009 01:30 PM	03-15-2010 12:45 AM by Ruth	26	592	The Bulletin Board
	Need advice please worriedflatmate 03-12-2010 06:42 AM	03-14-2010 11:16 PM by alivenwell	2	71	The Foyer
	March 26 - Chicago - Stand Up for Epilepsy Bernard 03-14-2010 09:09 AM	03-14-2010 10:55 PM by Rae1889	1	32	The Bulletin Board

» Most Recent Diary Posts

No seizures, but hormones apparently out of whack - It’s been 2 months since the last update. Stacy has been doing well. She has not had any tonic clonic seizures but she did have a couple of jerks here and there when she strayed too far from the diet and sleep regimen. Currently, she is having problems with an irregular period, a pinched [...]

Hanging tough - I’m happy to report that Stacy continues to do well with her diet, supplement and sleep regimen. She has not had any seizure events since my report of same on the blog. She has stopped the once weekly neurofeedback sessions for now, but may resume them again in the future as necessary.

Steady as she goes - It’s been a while since the last update and that’s mostly because there isn’t anything to report (w00t!). Stacy switched back from the extended release Dilantin to the regular brand name and she seems to be tolerating/metabolizing it much better. She hasn’t had any seizure activity since the last entry here. She still goes for neurofeedback [...]

Too many potholes in this road - Stacy had a single tonic clonic seizure today. This one was very unusual for her though – it occurred at noon while she was out in public (waiting in line at a restaurant) with friends. She fell and hit her head near the bridge of her nose – just under the right eyebrow – on [...]

Wouldn?t you like to go where everybody knows your name? - Stacy went status again last night. I administered Diastat, but it didn’t help, so I called 911 and back to the ER we went. I had been visiting with friends in the evening (rare night out for me), so I’m not sure if Stacy took her evening dose of Phenytek (300mg extended release Dilantin). [...]

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