coping

  1. K

    Wife had a seizure

    My wife had childhood epilepsy until she was about 13. They had her on depakote I think. She had petit mals. We got married when she was 20 and at that time the Dr said that she wasn’t on a high enough dose to stop anything so he took her off. Fast forward to Christmas Eve this year when she had...
  2. N

    [Recommended] My Degeneration

    "My Degeneration" is a memoir about Parkinson's, so I know it is a bit off-topic for folks on this forum. But it has a lot to offer anyone who is suffering from a chronic disease or who is taking care of someone with a chronic disease. The sections about the frustrations presented by doctors and...
  3. R

    New here :) (managing unmedicated)

    Hi there, I am a 34 year old male living in South Australia and have been living with seizures now for around 4 years. During this discussion I am going to point out some of my own personal observations that may turn out to have no relevance at all, or be in disagreeance with some peoples...
  4. HeatherKrajicek

    Learning to Cope

    I suddenly began having seizures April 04, 2012. I had never had a seizure before in my life. Now after 3 times in the epilepsy monitoring unit, trips to two major hospitals we finally have a diagnosis. My neurologist says that I have temporal lobe focal seizures. They can not be seen on the EEG...
  5. C0nn0rCh0sen

    Epilepsy AND diabetes?

    Hi everyone. I haven't been on here for a long time. In summer last year i was diagnosed with diabetes. Alongside all of my epilepsy treatment and medication, i have been really struggling. Like one illness doesnt make you feel isolated enough already. I was just wondering if there is anyone...
  6. B

    Shingles? Should I be worried or is this normal?

    To anyone who cares to listen. So, been on Keppra for 5 months or so now and just the other day I started developing a rash on the left side of my neck as well as on and behind my left ear. Went to the Doctors office today and she confirmed my suspicions about what I had... Shingles. First of...
  7. P

    When did you first meet someone else with epilepsy?

    I was 28. And we instantly bonded. It's as if we were war buddies -- from down in the trenches. Fighting the same enemy with no allies in sight. We had our own language and our own coping secrets. And we remained friends for life.
  8. C

    How to help your family cope

    I started having seizures just a few months ago at age 47 in connection with hormonal shifts. It seems my brain is getting better at it... they are increasing in frequency. I have gone from being a busy, productive member of my family and community, to being unable to even carry my...
  9. A

    First Post - coping

    Hey, I'm new to this forum and just thought joining would give me an outlet to vent and get to grips with things..... i guess everyone on here knows that epilepsy is just something you have a part of you but it doesn't make who you are...why is it some people dont understand this and i end up...
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