First, I apologize for the lack of updates since the last entry. One of these days, I will get Stacy into the habit of posting her own entries, but until then, they will continue to hinge upon my ever shrinking free time.

The month of October finished off with Stacy complaining to Dr. Manso about having to take 3 pills (300 mg Dilantin). The side effects were minimal, but at times the pills caught in her throat or upset her stomach. She insisted on finding a way to reduce her dosage of Dilantin and so Dr. Manso suggested trying to reduce the Dilantin to 200mg while supplementing with Topamax to see if she maintained seizure control with a more tolerable pill swallowing experience.

If you are thinking of the old adage, “If it ain’t broke, don’t fix it” then you are either very wise or have been down this road before. Over the next couple of weeks, Stacy ramped up on the Topamax while reducing her Dilantin to 200mg daily. She started having jerks again but was otherwise satisfied with the new regimen.

Then I had to leave town for a 3 week work assignment. Stacy had my parents nearby to help her get around, run errands (since she is not allowed to drive) and watch the boys. Of course, there is some stress involved in dealing with the in-laws so closely every day.

A few days after Halloween (sorry, I didn’t take good notes while I was half a world away), Stacy had at least one TC/grand mal seizure. I say at least one because that is all that my parents were able to confirm. They found Stacy in bed late in the morning after our oldest son (5 years old) called them on the phone saying mommy would not wake up. Stacy was post-ictal/unconscious for most of the day and according to my parents, took about a week to be functional again. I don’t know how good Stacy was at following her medication regimen during this period.

I returned home Wednesday, Nov. 16 and had some trouble adjusting to the change in time zones, jet lag, etc. Sunday night (20th), I went to sleep around 8pm while Stacy stayed up scrapbooking with her friend. She came to bed around 1am – the second night in a row that she went to bed well past her routine bedtime. At 5:33am, she had a TC/grand mal seizure. She then proceeded to have several more TC/grand mal seizures at 5:53am, 6:45am, 7:10am, 7:54am and 8:52am. Then she slept most of the day (Monday). This was very similar to what she experienced back in May.

Around 5pm she was up and about, lucid and alert although tired and sore. She managed to eat a few bites of dinner though she felt nauseous. She also took her medication before retiring for the night around 7pm.

At 12:15am she had another seizure. At this point, I was beginning to get very worried. She proceeded to have two more seizures an hour apart each at roughly 1:30am and 2:30am. Mercifully, she slept from then on. I got up around 6am and started my day while she slept in. Around 8:40am, I went in the room to check on her and saw her just regaining her breath with the body all taught. I’m pretty sure that she had another seizure. I set a baby monitor in the room and listened all day as I worked at my home office.

I tried calling Dr. Manso throughout the day without success. I kept leaving messages on their answering machine and calling service.

Stacy slept peacefully until 4:15pm when she had another seizure. This was quickly followed by another at 4:36pm. She felt warm to the touch so I took her temperature and she had a 100 degree fever at 4:42pm. At this point, I called for an ambulance to take her to the ER.

Dr. Manso also returned my call while the ambulance was enroute and agreed that she needed to be stabilized at the hospital. She had another seizure at 5:27pm and the ambulance arrived shortly afterward. They put her on oxygen and started an IV drip for her electrolytes while we rode to the hospital.

At the ER, they added Cerebrex to the IV drip. Stacy had another seizure in the ER at roughly 7pm and they gave her a shot of 2mg of Ativan although the shot was administered after the convulsions had stopped already.

They took blood for testing, performed an X-Ray on her lungs to ensure that they were not filled with liquid and gave her some anti-biotics for the fever. The X-Rays came back negative and the ER doctor requested and performed a spinal tap to ensure that she didn’t have Meningitis or blood in the spinal fluid (because he wasn’t sure what was causing the fever). I think it was around 1am when they took her for a Cat Scan. The results of all tests came back negative (thank goodness).

Around 2am they admitted Stacy to the hospital and we moved into a room. Stacy was basically unconscious throughout the entire day and ER experience. They added more Cerebrex to the IV in the morning. Stacy drifted in and out of sleep all day (Tuesday).

Wednesday Stacy was more alert although still quite confused about why she was in the hospital. She managed to eat a little bit of breakfast and lunch before the neurologist stopped by in the early afternoon (around 2pm). She ordered an EEG and an MRI and they were both done that afternoon. The MRI came back negative (no visible damage to the brain).

By Wednesday evening, Stacy was fully alert and lucid although she still slurred her speech since she bit the heck out of her tongue. The doctors said there was a good chance Stacy could be released Thursday (Thanksgiving).

Thanksgiving morning, Stacy was noticibly better. She was alert, good memory recall and talking much better (the swelling in her tongue was diminishing). However, when she tried standing up for the first time in over 3 days, she was unsteady on her feet. She swooned and had no sense of balance. As a result, the docs said she would need to stay for one more night until she was steady on her feet.

Thankfully, she was doing much better Friday and was able to get up and move around (albiet slowly) by herself. The doctor who saw her in the morning could not believe how fast she had recovered from one day to the next. She was released right around noon.

She is now back to taking 300mg of Dilatin daily with no Topamax. We have a follow up scheduled with the hospital neurologist next week. Stacy has not exhibited any seizure activity although she is very low on energy – sleeping through at least 1/3 of each day – and complains of headaches and either painful tingling in her hands and feet or feeling like they are dead weights.

Fortunately, her appetite has returned, she is eating well and taking her medications. I hope the drowsiness, headaches and other complaints are just hangovers to the seizures and flood of drugs she got at the hospital and she will soon be back to “normal” after her system recuperates/adjusts.

I expect the ambulance, hospital, doctor, lab, radiology and mri bills to arrive just in time for Christmas. Joy.