It’s been far too long since the last blog update. I apologize for that. The good news is that there hasn’t been any event that pushed this to be a priority.

Stacy has been doing fantastic this year in managing her diet, medication, sleep and daily/life schedule. She is a much stronger person today in avoiding sugary foods. She strictly adheres to her bed time sleep schedule – even when I have to stay up a bit later for one reason or another. And last, but not least, she isn’t overloading her daily schedule with too many volunteer projects / work / etc. (ie. stress).

She rarely has any seizure activity these days. I would estimate maybe one short CP seizure (they almost look like absence seizures, but they aren’t) per week (or every two weeks) while watching TV in the afternoon or evening. These very infrequent events only happen when she is watching TV and I suspect it has something to do with the TV putting her brain into a passive state.

At any rate, I did want to post an update for the people who had asked me about her. She is doing great. :)