hello everyone,
I'm going to get right into it I have a 6yr old who was diagnosed with focal seizures at the age of 2yrs. since then he has tried three different meds tegratol, topamax, and finally keppra. Both the tegratol and the topamax made the sittuation worse than it was. With tegratol i was unsure he was 2yrs and wouldn't stop seizing, with the topamax same thing and now the keppra. He is doing great rarely has seizures while on it but if the dose is missed just one i can be expecting a seizure to come within the next 24hrs or so. Overall it works better than the others, just recently while in the mix of switching nuerologist the new dr. requested to add another because he was on a high dose of the keppra. Can this be true 100mg liquid form 12ml twice daily and doing great no aggressive behavior but a little bit distracted at school but nothing major he was doing fine. Now the dr. wants to add topamax so i agreed to try it out the entire week he seem as if he was in zombie land and couldn't complete his sentences, his eyes were extra glossy as if he had just got really high. Just so happen he had an eeg appointment, on the way he went into a 40min seizure and i was directed to take him to the hospital. In which his doctor up the dose of topamax, something that i didn't feel to comfortable with, he didn't have a seizure for 3 months prior to adding the topamax. I came home after being at the hospital and decided to take him off the topamax and just give him the keppra it's been a full day now and already i see changes in his behavior for the better on the keppra alone.
my questions are is it ok for me to take him off the topamax after being on it for a week without being winged off by a doctor, and is there a such thing as him being on a too high of a dose of keppra and it no longer being affective in which added another med would be best eventhough he hasn't had any seizures in 3 months? don't know what to do or what's best and it seems as if the drs are just medicating my son uppppp to thhe maxx help!!!!
I'm going to get right into it I have a 6yr old who was diagnosed with focal seizures at the age of 2yrs. since then he has tried three different meds tegratol, topamax, and finally keppra. Both the tegratol and the topamax made the sittuation worse than it was. With tegratol i was unsure he was 2yrs and wouldn't stop seizing, with the topamax same thing and now the keppra. He is doing great rarely has seizures while on it but if the dose is missed just one i can be expecting a seizure to come within the next 24hrs or so. Overall it works better than the others, just recently while in the mix of switching nuerologist the new dr. requested to add another because he was on a high dose of the keppra. Can this be true 100mg liquid form 12ml twice daily and doing great no aggressive behavior but a little bit distracted at school but nothing major he was doing fine. Now the dr. wants to add topamax so i agreed to try it out the entire week he seem as if he was in zombie land and couldn't complete his sentences, his eyes were extra glossy as if he had just got really high. Just so happen he had an eeg appointment, on the way he went into a 40min seizure and i was directed to take him to the hospital. In which his doctor up the dose of topamax, something that i didn't feel to comfortable with, he didn't have a seizure for 3 months prior to adding the topamax. I came home after being at the hospital and decided to take him off the topamax and just give him the keppra it's been a full day now and already i see changes in his behavior for the better on the keppra alone.
my questions are is it ok for me to take him off the topamax after being on it for a week without being winged off by a doctor, and is there a such thing as him being on a too high of a dose of keppra and it no longer being affective in which added another med would be best eventhough he hasn't had any seizures in 3 months? don't know what to do or what's best and it seems as if the drs are just medicating my son uppppp to thhe maxx help!!!!