Hope this helps
It's what I use since I hate abbreviations too. I copy & pasted it to Microsoft Word then saved it to my hard drive as a reference.
Abbreviations for the Board
2Gens - Secondary Generalized Tonic Clonic Seizures -- which are Generalized Tonic Clonic Seizures which start from the same focal point
A-Abscence
AED - anti-epileptic drug
AEEG - ambulatory EEG - this is where you are hooked up to an EEG machine that you 'wear', then you go home with it. Usually 24-48 hours.
bid - twice daily
BRE - Benign Rolandic Epilepsy
Catamenial epilepsy - seizures somehow connected with/related to hormones and the female cycle
CP/CPS - complex partial seizure
DBS - Deep Brain Stimulation, a form of surgery where a stimulator is put in the upper chest with wires & electrodes attached to the brain, stopping or cutting back on the amount of seizures.
DD/DS- dear daughter/dear son
deja zoo = same brain, different meds
dep - depakote
DH-dear husband
dx - diagnosis
dx-Disscusion
E - epilepsy
e.m or E.M = early menopause
EMU: Epilepsy Monitoring Unit: That's the area where " lg " works and helps us.
epi - epileptologist
GTC - generalized tonic clonic
hx = history
Ictal - the period of time that is the seizure.
Post ictal - the period of time after a seizure (often includes confusion, sleepiness, exhaustion), which leads us to
Inter ictal - the period of time between seizures IS - infantile spasms
JME - Juvenile Myoclonic Epilepsy
keto/keto diet - ketogenic diet
Kindling - this is a theory that not all neurologists agree on. It says that the brain "learns" to seize, by seizing. You create neural pathways (get better at doing something) by doing something repeatedly, so theoretically the brain gets better at seizing. Under this theory, it is important to stop ALL seizures, not just most.
LGS - Lennox-Gastaut syndrome
LKS - landau-klaffner syndrome
LTL - left temporal lobe
LTM: Long Term Monitoring: refers to or is (yet) another name for the Video EEG in-hospital monitoring done over a seriees of days where the primary activity is Boredom
myo- myoclonic seizure
NCSE-- non convulsive status epilepticus (same as "regular" status only, non convulsive entails any/all of the other seizure types EXCEPT grand mal/tonic clonic)
NES - non-epileptic seizure
neuro - neurologist
Neuropsych - Neuropsychological testing - a series of tests (written, oral, manipulation, etc.) which are designed to help understand where in the brain you are processing information. This abbreviation may also mean Neuropsychologist: a doctor specialising in this field.
npo = nothing by mouth
NT-Night terrors
OT - off topic
PCP - primary care physician
ped - pediiatrician
PET Scan-Positron Emission Tomography Scan: A Scan, in this case, of the brain, which checks to see if the brain is metabolizing glucose or not.
pheno - phenobarbital
prn = as needed
PME - Progressive Myoclonic Epilepsies
po - orally, by mouth
POF = premature ovary failure
qd = every day-- Latin: quaque die
qid - four times daily
RTL - right temporal lobe
rx -prescription
SE - side effect
SP - simple partial
status-- status epilepticus
SUDEP - Sudden Unexplained Death in Epilepsy
TBI-Traumatic Brain Injury
TBD- to be diagnosed
TC - tonic clonic
topa-topamax
tid - three times daily
TLE- Temporal Lobe Epilepsy
VEEG - Video EEG - this is where they put you in the hospital for several days (or more) hooked up and watched on camera at all times. Helps in identifying the seizure focus, or in finding seizures a regular EEG did not pick up.
Getting the glue out of your hair has been the topic of many discussions here!
VNS - vagus nerve stimulator
YMMV = Your Mileage May Vary. "It worked this way for me, but it might work differently for you."
RTL - Right Temporal Lobe
A - Absence seizure
EPI= Epileptologist
dx = diagnosis
Jamais vu - sort of the opposite of the deja vu: the sense that NOTHING is familiar (even though it really should be).
JL - John Lester, the great guru who manages the Braintalk forums
CCC - Cut the Coconut Club - refers to a group of members who have had/are considering having brain surgery to correct seizures
Status (or status epilepticus) - a condition of continual seizures (of any kind) that can be life-threatening and requires emergency attention.
For women mainly: many of the anti epileptic drugs cancel out the birth control pill. Check with your doctors to make sure that you are not going to have any surprises.
In reference to med dosage:
bid - twice daily
tid - three times daily
qid - four times daily
po - orally, by mouth
LOL..........laughing-out-loud!
IMHO......... in my humble opinion
BTW.............by the way
ROTFLMAO........rolling on the floor laughing my _ _ _ -off
DH.......Dear Husband (likewise, DD for Dear Daughter, you get the idea)
Some helpful tips: please try not to write in all capitals, as this is considered "yelling" in the electronic communication world. ALSO it helps readability if you break your post into paragraphs or sections, rather than confronting the reader with a 'wall' of text.
Searching past posts - people new to the forum usually need to know that they can find a lot of information about a question in past posts, if no one's around to answer right away. You can search for either a subject - ie Tegretol, complex partial seizure, status, etc., or for past posts by a specific member, by nickname. Do this by going to the drop-down box on the button at the top & 3rd from the right.
Graphics - some of the posters and readers here have trouble with moving graphics. If you put them in your thread, please note "Graphics" in the subject line. Likewise if you refer someone to another website with lots of moving graphics, please try to mention that.
