diagnosed @ 40 with TLE

[m2mmt]

Hello Everyone, this is my first post here. Actually the first time i have ever posted on a board. I turned 40 in August of last year and had my first grand mal seizure at the end of September. Followed by another 4 weeks later while staying awake for a sleep deprived EEG the next day. I am a Registered Nurse and had my first seizure at work in the presence of co-workers,friends, and colleagues of 15 years. A grand mal seizure- full out turning blue, incontinent of urine, mangled my tongue, ect. My MRI showed a 2mm spot from a possible "old head injury" (that I am unaware of having) but not in the area of my seizures.
A couple of months prior I had what I would call "episodes" of hypersensitivity or awareness of my body or my physical surroundings. Its hard to explain really. Other times I would feel tingling throughout my body. When I had my second seizure it was 4 am and I was outside on the deck with my friend and the best way to describe it is everything went still. I couldn't hear anything everything was quiet. There was a stillness around me and within me. It is very difficult to explain. I felt isolated and connected all at the same time.
I have always had various "psychic abilities" .
Has anyone had similar experiences?
Thank you all for your time

 

[Howll]

I've recently been diagnosed with TLE. I feel the hypersensitivy since my last seizure, I've had four grand mals in total over 10 years, I wasn't diagnosed until my last one because there was a 6 year gap (without meds). However, be always suffered with anxiety, even before the seizures, and I do think the hypersensitivy could be to do with that.

I'm feeling at the moment like I'm in constant high alert mode, my anxiety has gone through the roof because I'm constantly looking at every feeling in my body or mind as if it might be the start of a seizure. For instance, I've historically got Deja vu and then a taste before my seizures. Now, since my seizure in August, I've been constantly thinking "have I done this before?" As if I'm looking for a sign of a seizure. It's with the stupidest things too, things I know I have done before, like walking into work. It doesn't come with any other feelings, but I feel like I've conditioned my brain to be always alert to everything as a precaution. It's really bothering me though, I can't seem to shake it off and relax.
Maybe that's what you're going through? The tingling could be adrenalin from anxiety/stress because you're always thinking about it?

 

[Nakamova]

Hi m2mmt, welcome to CWE! and you too Howll, if I missed your earlier debut.

Partial seizures can take the form of a variety lot of unusual sensory experiences -- including tingling, deja and jamais vu, out of body sensations, distorted perceptions (like Alice-in-Wonderland syndrome), hallucinations, etc. You can read more about the different kinds here: http://www.epilepsy.com/learn/types-seizures/simple-partial-seizures

m2mmt, I had my first seizure out of the blue at age 35. There was no obvious cause, though perhaps it had to do with a head injury I had at age 5. Like you, the seizure was a doozy (actually two grand mal seizures, one right after the other). I also mangled my tongue, turned, blue, peed myself, etc.). I have had over a dozen grand mals since, but none of them have done as much damage to my tongue, and I haven't been incontinent in any of them either, if that's any reassurance. My seizures have been controlled for the last 6 or so years by medication, so I hope the same will happen for both you and Howll.

You might be interested in these threads related to psychic symptoms:
http://www.coping-with-epilepsy.com/forums/f27/do-you-experience-psychic-phenomena-9235/
http://www.coping-with-epilepsy.com/forums/f23/psychic-symptoms-21315/
http://www.coping-with-epilepsy.com/forums/f27/experience-aura-auras-2485/
http://www.coping-with-epilepsy.com...lings-leading-up-tonic-clonic-seizures-17981/

 

[Cint]

Welcome m2mmt and Howll,

I started experiencing my first SP seizures at the age of 22. No head injury, no encephalitis, no meningitis, etc. They just started out of the blue. I would feel like I was drifting away for just a minute and then be back. The dr. I went to said I was hypoglycemic, so he prescribed some med for that. The med didn't do a damned thing. The seizures became CPs, I would stop mid-sentence and not be able to speak nor understand what was being said to me. Folks said I would get this faraway stare and my mouth would start chomping-like. This only lasted for a moment, maybe two. But I would come out of it and be able to understand, but wouldn't be able to speak for 15-20 minutes. Then they went on to TC's or grand mal seizures. Actually, they are secondary generalized seizures because I have the CP seizure first. The SP is actually the "aura". I sometimes, not often, hear voices and know that I am going into a seizure and need to get to a safe place.

In addition to the links Nak posted, here's more:

http://www.epilepsy.com/information...s/classifying-seizures/distinguishing-factors

http://www.epilepsy.com/learn/impact/thinking-and-memory/thinking-memory-and-epilepsy

 

[Maidenminx]

I was diagnosed with TLE at 31, 3 months after marrying my unbelievably awesome husband. I'd been getting up in the morning feeling like I was still dreaming. It was like enough of my brain would wake up enough to function, but the rest of my brain would be in that subconscious mode. Most mornings it would last from 5 -25 minutes, but one morning I couldn't shake it, so asked Hubby to stay home from work. We got our son to school, and not long after that, I went to lay down, Still half dreaming, and had been for over 2 hours by this time, and I woke up in hospital. I was medicated as soon as my neuro was spoken to, because I'd had a tc when I was 17, which I assumed was purely related to the hallucinogens I had consumed.
I too have always had some level of "psychic abilities", and have found myself questioning whats what when it comes to possible seizure activity. I've decided, if it doesn't worry or scare me when it happens, I'm not going to mention it.