epilepsy and working thoughts

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mcsmith

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hi i got epilepsy about 2 yrs ago when my dad died, n i find that keeping yr mind busy works well .stop yrself from staring, try not to think to much about 1thing for too long, im a window cleaner i have 1fit a month but every time i do its at home n i think its cos my mind is too active on other things.1 more thing if anyone who is with u sees u going into a fit, shouts yr name n poke or prods u will possibly bring u bk out of it, tried and works well
 
mcsmith

Sorry about your dad passing, its good you find that people poking and prodding you brings you out of a seizure, personally I would not like that. But what is tried and tested for you does not mean it works for me.
 
ask them to shout louder lol ,not only that u would nt know u was getting poked or prodded, iv read somewhere that yr brain recognizes the voice which brings u bk round when yr fitting or its as yr going into a fit,iv bin prodded a few times but better than waking up in resus lol not gud, i was hoping it may help some other people cos my specialist didnt mention any of it hope it helps
 
Hey mscmith, welcome to CWE!

If you've found a technique that "derails" your seizures when they're just starting, that's great! Wouldn't work for me I'm afraid, since my seizures generalize to tonic-clonics (grand mal seizures) right away, with no warning signs or build-up.

A few folks have found that certain kinds of acupressure can help stop a seizure or prevent it from escalating. You might find this link interesting: http://www.massagetoday.com/mpacms/mt/article.php?id=13466
 
ask them to shout louder lol ,not only that u would nt know u was getting poked or prodded, iv read somewhere that yr brain recognizes the voice which brings u bk round when yr fitting or its as yr going into a fit,iv bin prodded a few times but better than waking up in resus lol not gud, i was hoping it may help some other people cos my specialist didnt mention any of it hope it helps

I agree with FedUp. What works for one, doesn't work for all. Shouting definitely gets attention, but NOT good attention. I've been prodded quite a few times due to a seizure (tonic-clonic) in public and acting like an idiot by yelling and trying to fight the medical attendants wasn't good (although I don't remember doing it). I really don't see how this helps others. And btw, here in the USA, we don't call them "FITS". A spoiled brat has a "fit". They're called seizures.
 
I once had someone yanking me on the ear to try and "snap me out" of a seizure. Didn't know anything about it at the time of course, but i sure felt it later!

Only knew because i asked a friend why my ear was so freaking sore :lol:

Hi there mcsmith, and welcome to the site :hi5:
 
ask them to shout louder lol ,not only that u would nt know u was getting poked or prodded, iv read somewhere that yr brain recognizes the voice which brings u bk round when yr fitting or its as yr going into a fit,iv bin prodded a few times but better than waking up in resus lol not gud, i was hoping it may help some other people cos my specialist didnt mention any of it hope it helps

Why would I ask somebody to shout louder!!! Yes I would know I was prodded and poked when I come out of the seizure, it is sore, it was happened once only. I wonder why your specialist did not mention it? I agree with Cint a fit is something a spoiled child has, a seizure is different, I do not live in the USA.
 
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I once had someone yanking me on the ear to try and "snap me out" of a seizure. Didn't know anything about it at the time of course, but i sure felt it later!

Only knew because i asked a friend why my ear was so freaking sore :lol:

:huh: Now that is something to SHOUT about! Someone needed to kick them to the curb!
 
Welcome to the group mcsmith

We are all different when it comes to epilepsy, having people prod you or yell at you may work for you but not for everyone.

I started having seizures again in 2002 when I was 24 (after being 21 years seizure free). When my seizures returned I was having auras, simple / complex partials & the odd tonic clonic. During the complex partials I would either stare in space or do strange things. I never had any memory of the seizure from the time of the aura until I came out of it so the only way I knew what happened was if someone (family member, friend) was with me & let me know what happened.

As for work, I had a lot of trouble working & could only get part time or casual work as the stress affected my epilepsy & I'd have more seizures which then affected my work.

I had brain surgery in 2011 to help control the seizures, it helped a lot as I went 2 years seizure free. I did start taking funny feelings in 2013 which we now know are focal seizures again (like simple partials) but they aren't like the seizures I had pre surgery.
My seizures don't happen for a reason, they just come when they want to & trying to keep my mind busy doesn't work for me.

I am now working full time as a receptionist for a builder, I've had a couple of my funny feelings at work (i usually go down to the back room until the aura is finished then ask a co worker to look after the reception until I've recovered) but most of mine are at night.
 
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Hey mscmith, welcome to CWE!

If you've found a technique that "derails" your seizures when they're just starting, that's great! Wouldn't work for me I'm afraid, since my seizures generalize to tonic-clonics (grand mal seizures) right away, with no warning signs or build-up.

I'm the same Nak,
With the couple of tonic clonics I have had in the last 14 years (since my epilepsy returned) only 1 of them I had an aura, the rest I ended up in hospital.
I finally clicked to that when I had the tonic clonic in hospital during my VEEG last year, I had no aura just went into the seizure. I remembered none of it, the nurse had to tell me what happened.

I always get an aura with the partials though
 
:huh: Now that is something to SHOUT about! Someone needed to kick them to the curb!

Yeah my friend tried but she said this guy was so convinced he was "helping" that he wouldn't give in and p**s off.

Can laugh about the ignorance and the absurdity of the idea now, but was NOT amused at the time, i can tell you.
 
hi all

i didnt mean yank they ears lol or scream i was jokin bout shoutin louder, i was hopin for some response by others that have similiar experiences, by auras smackin lips,starring, panic attack or anxiety iv only suffered afew yrs and finally comin bk round after all the different meds tryin to find someway easier of dealing with it,n sorry bout fits frm uk i class all same thing n first time on here
 
the thing with epilepsy it not only effects u it effects all around u so i find it puts more pressure on friends n family n was tryin to relieve some of that stress has any1 tried growin charottes web or tried the oil does any1 knw anyother ways, techniques to deal with them
 
.. tried growin charottes web or tried the oil does any1 knw anyother ways, techniques to deal with them
I've been having really great results lately with something called Holden's Hope. It is a cannabis paste but it is so low in THC (the part that gets you stoned) and high in CBD, that it is legal. I'm taking half the AEDs that I was with no loss of seizure control. Give it google. :) Welcome
.
 
the thing with epilepsy it not only effects u it effects all around u so i find it puts more pressure on friends n family n was tryin to relieve some of that stress

Those of us who've suffered E for 30+ years know full well the pressure it puts on family. Ask my now grown kids who witnessed full blown tonic-clonic seizures and thought their momma was gonna die. Your way of relieving stress would have destroyed their sense of well-being.
 
Your way of relieving stress would have destroyed their sense of well-being.
Not sure if you are talking about shouting to interrupt a seizure from generalizing or about using cannabis products......?
 
I am so sorry for your loss , the main thing is don't let anything OverLoad your mind that is never good . Now you have to be good to you , take time and be good to yourself , if it's reading a favorite book . Do something you like or want to do , that's part of being good to yourself and it is IMPORTANT . Exercise , and give you mind a work out too . Be Happy . Love is around you Reach Out for it .
 
Thank you for sharing the info about Holden's Hope , If it would work for me that way I would do it tomorrow . How long have you been using Holdens and what Meds were you on before ? Important , thank you .
 
I've been using the Holden's Hope paste since last September. During that time I have gradually stepped back and gotten totally off the Valproic Acid (depakoke) that I was on (100mg/day). I am still on Phenobarbitol but that is next to go.
 
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