Hello everyone,
My name is Alex and I've have a condition that I've been suffering for 7 years with. I'm an otherwise healthy 34 year old man and I don't have any other problems, and no heredity problems of any sorts.
About 7-8 years ago I spent excessive amounts of time in front of the computer, often that's all I did. I'd suffer from headaches pretty much all the time from eye strain or too much concentration. After waking up in the morning, I'd turn on the computer and turn it off just before bed.
One day I when to bed with the usual pressure in the head from all the staring at the screen, but this time I felt there was something about to happen. It's difficult to explain, but it felt like a seizure coming on, a certain feeling of uncertainty or dizziness, malaise. I now just call it an aura.
It somewhat came in waves and just before I fell asleep a MASSIVE pain erupted from behind my left eye, my neck, jaw, face, and left arm simultaneously. My head tilts towards the right hand side and I squint my left eye as the left side of my face and arm cramps. Erratic arm moments.
When it happens I can not lie down and have to jump up. It feels as if I am having a stroke and can barely make it to the door. I scream in pain as my entire left side shakes, cramps and basically just explodes. It felt as if someone had takes a hook and hooka an artery behind my left eye and pulls it out, jerking the nerve right down to my left fingers with it. The pain disappears after 30 seconds.
In the first year it happened once a year. Then the next year 3-4 times. The intervals got smaller and currently I'm almost at two a week, 7 years later.
I get these auras all the time now. My girlfriend left me 12 months ago, because the seizures are controlling, making me really drawn back. The breakup was very bad for me. We lived together in a very small apartment for 6 years, as my health got worse.
Right now I just put on a mask at work, just to make it home again to sit around and worry about my seizures. I never go out anymore, something I should do to get my mind off the breakup. It feels as if I'm trapped with a broken heart and an incurable disease. I get these auras all the time now. Most often they don't lead to seizures, but at least a few times a week they do
Guess my 6 year relationship dissolved because I was avoiding life. Going out to the cinemas or where people gather is risky because I'm frightened of the attack "coming". It's gotten worse in the last 6 months, so I'm rarely going to sport these days, something I dearly miss.
I've been to many doctors, blood checks, neurological exams, head MRI w. contrast agents, angiologists, chiropracters, dentists, had extended EEGs done, ECGs, had my eyes checked etc. Everything is fine and I'm "chronically healthy". *sigh*. I do have third molars, but according to the dentists, it's highly unlikely they're causing anything. Maybe they're causing my jaw pressure, possibly the strain behind my left eye. I'm planning on having the third molars removed.
My big hope is that the wisdom teeth are at least contributing to the seizures. But I do not know.
In the meantime the attacks continue to worsen. I'm at wits' end. I fear there will never be a solution, currently I'm just hoping for a cause.
In ten days I will be admitted to a specialist clinic....I'm so scared that I will never get rid of these seizures and that they'll just get worse and worse.
help(
My name is Alex and I've have a condition that I've been suffering for 7 years with. I'm an otherwise healthy 34 year old man and I don't have any other problems, and no heredity problems of any sorts.
About 7-8 years ago I spent excessive amounts of time in front of the computer, often that's all I did. I'd suffer from headaches pretty much all the time from eye strain or too much concentration. After waking up in the morning, I'd turn on the computer and turn it off just before bed.
One day I when to bed with the usual pressure in the head from all the staring at the screen, but this time I felt there was something about to happen. It's difficult to explain, but it felt like a seizure coming on, a certain feeling of uncertainty or dizziness, malaise. I now just call it an aura.
It somewhat came in waves and just before I fell asleep a MASSIVE pain erupted from behind my left eye, my neck, jaw, face, and left arm simultaneously. My head tilts towards the right hand side and I squint my left eye as the left side of my face and arm cramps. Erratic arm moments.
When it happens I can not lie down and have to jump up. It feels as if I am having a stroke and can barely make it to the door. I scream in pain as my entire left side shakes, cramps and basically just explodes. It felt as if someone had takes a hook and hooka an artery behind my left eye and pulls it out, jerking the nerve right down to my left fingers with it. The pain disappears after 30 seconds.
In the first year it happened once a year. Then the next year 3-4 times. The intervals got smaller and currently I'm almost at two a week, 7 years later.
I get these auras all the time now. My girlfriend left me 12 months ago, because the seizures are controlling, making me really drawn back. The breakup was very bad for me. We lived together in a very small apartment for 6 years, as my health got worse.
Right now I just put on a mask at work, just to make it home again to sit around and worry about my seizures. I never go out anymore, something I should do to get my mind off the breakup. It feels as if I'm trapped with a broken heart and an incurable disease. I get these auras all the time now. Most often they don't lead to seizures, but at least a few times a week they do
Guess my 6 year relationship dissolved because I was avoiding life. Going out to the cinemas or where people gather is risky because I'm frightened of the attack "coming". It's gotten worse in the last 6 months, so I'm rarely going to sport these days, something I dearly miss.
I've been to many doctors, blood checks, neurological exams, head MRI w. contrast agents, angiologists, chiropracters, dentists, had extended EEGs done, ECGs, had my eyes checked etc. Everything is fine and I'm "chronically healthy". *sigh*. I do have third molars, but according to the dentists, it's highly unlikely they're causing anything. Maybe they're causing my jaw pressure, possibly the strain behind my left eye. I'm planning on having the third molars removed.
My big hope is that the wisdom teeth are at least contributing to the seizures. But I do not know.
In the meantime the attacks continue to worsen. I'm at wits' end. I fear there will never be a solution, currently I'm just hoping for a cause.
In ten days I will be admitted to a specialist clinic....I'm so scared that I will never get rid of these seizures and that they'll just get worse and worse.
help
(
