Hello. I'm Cetacean from San Francisco.
Chronic Temporal Lobe Epilepsy. I don't have it. It has me. Main trouble is it causes chronic insomnia daily and all that goes with it. Medications (Oxcarbazepine, Klonapin, LOTS of medical marijuana) keep it just barely under control most of the time. I spend weeks on my back sick when they do not.
Seems the epilepsy is due to a head injury from a bike-auto accident at age 5. Managed to get a long way in life with this problem behind my eyes. :brain:
I am 48, bald, blonde, and brawny; educated to an MBA, and managed to work in Japan in Japanese at a big car company HQ exporting their vehicles to Europe back in the early 90s, and to travel around the world (in one direction business class!) before the symptoms took me down. I also translated a book of Japanese spiritual poetry "Conversations with God" into English, and actually got paid for it.
Now I have much happier work doing in-home care for people far worse off than myself. It's great work if you can afford the wage. :bigsmile:
Actively seeking alternative treatments short of surgery. Currently pursuing EEG Neurofeedback. Anyone been there and done that?
Interested in sharing experiences with other medical marijuana patients.
Also wish to support other patients like myself whose illness has led to social isolation.
I look forward to meeting you all!:hello:
Chronic Temporal Lobe Epilepsy. I don't have it. It has me. Main trouble is it causes chronic insomnia daily and all that goes with it. Medications (Oxcarbazepine, Klonapin, LOTS of medical marijuana) keep it just barely under control most of the time. I spend weeks on my back sick when they do not.
Seems the epilepsy is due to a head injury from a bike-auto accident at age 5. Managed to get a long way in life with this problem behind my eyes. :brain:
I am 48, bald, blonde, and brawny; educated to an MBA, and managed to work in Japan in Japanese at a big car company HQ exporting their vehicles to Europe back in the early 90s, and to travel around the world (in one direction business class!) before the symptoms took me down. I also translated a book of Japanese spiritual poetry "Conversations with God" into English, and actually got paid for it.
Now I have much happier work doing in-home care for people far worse off than myself. It's great work if you can afford the wage. :bigsmile:
Actively seeking alternative treatments short of surgery. Currently pursuing EEG Neurofeedback. Anyone been there and done that?
Interested in sharing experiences with other medical marijuana patients.
Also wish to support other patients like myself whose illness has led to social isolation.
I look forward to meeting you all!:hello: