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I have had seizures since I was 4 years old. My seizures used to be cationic, but ever since 2006 I started to have convulsing ones. I have them about once a month every month. But ever since the beginning of this month (September) I have had 2 seizures and I have been feeling like another one is going to come on. I also have been having constant headaches, some of my headaches are like migraines and some are just regular ones. I originally thought that when the seizures had started up again that it was because I had been off birth control. The reason why I had thought that was because for the longest time I had not had one, but now I am not sure if that has anything to do with it.
I used to be on medication, but when I was 16 I was taken off the medication. My one neurologist that I had seen since the seizures had stated had me on several different meds. While I was on the medications i occasionally would have a seizure, but they wouldn't happen too often. Later on my doctor decided to leave her practice and she referred me to another doctor. When I went to new doctor he looked over all my records and he had decided to slowly take me off my medication, I was so re-leaved that he said that. So it took about 2 months for me to get done with all my meds. After another month or two my doctor says he wants to do an eeg. I go to take the eeg and there is still a little bit of activity going on in my head, but it wasn't enough to worry him too much. So right before I had turned 19, I ended up having my first convulsing seizure, I was put back on meds, but the medication just made me feel so bad. So I ended up just not taking it. Now fast forward to thanksgiving 07, I ended up having another convulsing one.
After that one seizure had happened I didn't have one for quite some time. I had a small one during the holidays of 2008. Now we fast forward to the spring of 2009, I was sleeping and I had another one. The seizure that happened when I was sleeping ended up being the last one till either before or after Christmas of 09. Now after I started school in the spring of 2010 the seizures had stopped. Soon after I had gotten off birth control they had stated back up again, and that is also when the feelings would come on as well. It was so strange because I had gotten the feelings like one was going to come on right before I had the seizure back in 06. Now, I get the "seizure feelings" as I call them constantly. In fact I had one while typing this up.
All I can say now is that I am sick to death of feeling like this, I just want answers to why this has been happening to me for the past 21 years. Both of my doctors that have seen me don't know what or why I have them.
Thanks for listening.
I used to be on medication, but when I was 16 I was taken off the medication. My one neurologist that I had seen since the seizures had stated had me on several different meds. While I was on the medications i occasionally would have a seizure, but they wouldn't happen too often. Later on my doctor decided to leave her practice and she referred me to another doctor. When I went to new doctor he looked over all my records and he had decided to slowly take me off my medication, I was so re-leaved that he said that. So it took about 2 months for me to get done with all my meds. After another month or two my doctor says he wants to do an eeg. I go to take the eeg and there is still a little bit of activity going on in my head, but it wasn't enough to worry him too much. So right before I had turned 19, I ended up having my first convulsing seizure, I was put back on meds, but the medication just made me feel so bad. So I ended up just not taking it. Now fast forward to thanksgiving 07, I ended up having another convulsing one.
After that one seizure had happened I didn't have one for quite some time. I had a small one during the holidays of 2008. Now we fast forward to the spring of 2009, I was sleeping and I had another one. The seizure that happened when I was sleeping ended up being the last one till either before or after Christmas of 09. Now after I started school in the spring of 2010 the seizures had stopped. Soon after I had gotten off birth control they had stated back up again, and that is also when the feelings would come on as well. It was so strange because I had gotten the feelings like one was going to come on right before I had the seizure back in 06. Now, I get the "seizure feelings" as I call them constantly. In fact I had one while typing this up.
All I can say now is that I am sick to death of feeling like this, I just want answers to why this has been happening to me for the past 21 years. Both of my doctors that have seen me don't know what or why I have them.
Thanks for listening.
