RanMan
Too Much Experience with Epilepsy
- Messages
- 408
- Reaction score
- 0
- Points
- 91
Hi, my name is Randy. I,m 49, 2 grown kids (19 yr old son & 23 yr old daughter) I've been married for 29 yrs (to the same woman) and I live in Ontario, Canada.
Here is a little bit about me:
I've had EP since 1979 controlled by medication so reported at that time to the "Ministry of Transportation" that I was controlled by medication, no questions asked and I didn't lose my licence.
I must have slipped through the system because in ALL cases you must go seizure free for 2 years even if controlled by meds.
I drove without a problem until Dec/02 during an incident in a parking lot(I just came off the highway).
Now my blood levels are being checked each week but the Ministry of Transport has tightened up the rules in this area in an attempt to reduce traffic accidents so that is making it more difficult to get it back. But if I do get it back (which I don't think) I still won't drive and risk the lives of others. I think that is the more resposible way to handle it and set an example for others.
It's just like driving drunk-you're taking a major risk.
At first I felt that some of my freedom was taken away but I've gone more than 2 years without it and I'm starting to accept it a little easier.
Carreer change due to seizure condition:
Music runs in my family and starting from age 9 I was playing drums and guitar with proffesional bands. Up until age 21 (1979) I was a singer/songwriter, music teacher and a studio musician. My only dream in life was to make a good living with my music. (I also developed Ulcerative Colitis at the same time, the Docs. say the two are connected)
Well, all that had to come to a stop. I was sitting at my desk at my P/T job when I had my first seizure. All I remember from that point on was waking up in the ambulance on the way to the hosp. After going through several tests and then seeing a neurologist, the tests showed that there was epileptic activity in my lower tempral lobe. He then persribed Dilantin and Pheonobarb (still on today) and the seizures were under control. I was even able to keep my drivers licence.
One major problem though, the pills were severely messing up my co-ordination. I walked like a drunk, slurred my speech, my own family was embarassed to be seen with me.
Since my co-ordination was so bad, I could no longer play guitar or drums and I had to give up teaching.
I was so depressed, I could no longer fulfill my dream, now what was I going to do.
I had to make a career change. I was putting in job applications all over but I had no other experience.
Finally I got hired on by the Federal Government as a courier and mail clerk. I worked my way up to Administraion Manager for the Unemployment Insurance Office for 21 years and then 9 years with Veterans Affairs.
My condition was getting worse with age, no seizures but the meds were blocking my learning ability so I couldn't take on extra duties.
As a result of this, my employer(The Government of Canada)
put me on medical retirement last year (I'm oly 48) but after my disability insurance runs out.
I had to learn to live with my disability and work around it.
Randy
Here is a little bit about me:
I've had EP since 1979 controlled by medication so reported at that time to the "Ministry of Transportation" that I was controlled by medication, no questions asked and I didn't lose my licence.
I must have slipped through the system because in ALL cases you must go seizure free for 2 years even if controlled by meds.
I drove without a problem until Dec/02 during an incident in a parking lot(I just came off the highway).
Now my blood levels are being checked each week but the Ministry of Transport has tightened up the rules in this area in an attempt to reduce traffic accidents so that is making it more difficult to get it back. But if I do get it back (which I don't think) I still won't drive and risk the lives of others. I think that is the more resposible way to handle it and set an example for others.
It's just like driving drunk-you're taking a major risk.
At first I felt that some of my freedom was taken away but I've gone more than 2 years without it and I'm starting to accept it a little easier.
Carreer change due to seizure condition:
Music runs in my family and starting from age 9 I was playing drums and guitar with proffesional bands. Up until age 21 (1979) I was a singer/songwriter, music teacher and a studio musician. My only dream in life was to make a good living with my music. (I also developed Ulcerative Colitis at the same time, the Docs. say the two are connected)
Well, all that had to come to a stop. I was sitting at my desk at my P/T job when I had my first seizure. All I remember from that point on was waking up in the ambulance on the way to the hosp. After going through several tests and then seeing a neurologist, the tests showed that there was epileptic activity in my lower tempral lobe. He then persribed Dilantin and Pheonobarb (still on today) and the seizures were under control. I was even able to keep my drivers licence.
One major problem though, the pills were severely messing up my co-ordination. I walked like a drunk, slurred my speech, my own family was embarassed to be seen with me.
Since my co-ordination was so bad, I could no longer play guitar or drums and I had to give up teaching.
I was so depressed, I could no longer fulfill my dream, now what was I going to do.
I had to make a career change. I was putting in job applications all over but I had no other experience.
Finally I got hired on by the Federal Government as a courier and mail clerk. I worked my way up to Administraion Manager for the Unemployment Insurance Office for 21 years and then 9 years with Veterans Affairs.
My condition was getting worse with age, no seizures but the meds were blocking my learning ability so I couldn't take on extra duties.
As a result of this, my employer(The Government of Canada)
put me on medical retirement last year (I'm oly 48) but after my disability insurance runs out.
I had to learn to live with my disability and work around it.
Randy
