Hi. I'm new here :)

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I was on lamotrogine first then keppra now tegretol I work for Northampton audi
 
Hi Gina --
Just wanted to offer my belated welcome, plus a shout-out from a fellow MA resident. (I'm in Cambridge, so not that close, except perhaps in political/cultural sensibility.) Hope you are enjoying CWE!

Best,
Nakamova
 
Hi it's finally nixes to know that accepted and not cast out because of my epilepsy Cambridge isn't far :) nice to meet you :)
 
Guys!! Help! I'm getting myself all worked up over nothing! The depression has really gotten to me just lately and during the change over from keppra to tegretol I'm panicking that my seizures are going to start up again! This combined with a headache 24/7 and depression is making me struggle! I'm loosing concentration at work and just really making life difficult! Any advise?
 
i dont have any advise apart from try and calm yourself down.Its natural to be a bit depressed and panicky when switching over to a new drug.Stress can bring on seizures as in sure you know,im also on Tegretol and have found it to be really good,i hope that you find the same in it.
 
I'm on Tegretol same as Crash, have been for over nine years and I like it too.
Lots of switching but never that one, it was my very first after dx.
I found next to no side effects either (sex drive disappeared for about nine months in the beginning but came back no problem and hasn't been a prob since).
Good luck sweetie, and try to tell yourself that hey, this could make things better, not worse.
 
Guys! Thanks it's really hard trying to explain how I feel sometimes to others but on here it's so easy! And as for your advise it was amazing its nice to know that there are others out there that feel the way I do! So comforting! I can't wait till I'm on my full dose of tegretol I'm hopeful about this med! Thanks for sharing with me guys very helpful :):) x
 
All my tests came back normal also but there is some reason I have t/c seizures. I worked in the medical field. I had a t\c dec of '06 at work. I was setting up computer to do a Ct exam and bam next thing I knew I was in ER. While on medical leave I received a letter of termination in the mail. OKlahoma is a right to work state so they can fire you for no reason. I had just deceided to go back to work filled out some apps and last week bam. Now I'm not sure of going back to work cant drive for six months and I don't want to drop a patient cause of another t\c. what to do? anyone on disability?
 
See I'm seizure free ATM but also suffer from t&c's however there was no reasons for mine .... Are you on any meds? I lost my license for a year not gonna lie but it sucked! At least you got your job back I was arguing with my bosses for a while
 
yes 700mg phenytoin and 300 mg gabapentin and Xanax as needed I didn't get my job back I have been unemployed since 12/06 we have a small cattle ranch and make our living off of it, but I loved being a xray/CT technologist. I have my license for now and I don't want to loose them that's my question I guess if you go on disability for seizures do you loose your DL?
 
I honestly couldn't answer that :/ ask you gp or neuro... Do you see and epilepsy specialist? That's who I got all the advise I needed from sorry I can't help you any further
 
Guys! The depression is really getting to me ATM :(:( any advise I need to keep myself occupied as oppose to sitting on the couch over thinking everything ...
 
Hope you pulled out of the tailspin Georgie. I find that putting the tight kind of music can help me out of the bad patches.
 
Hi Georgie B,
I used to get grand mals in my sleep but now I only get partials during the day and when they pop up all of a sudden I am always bewildered. I hate when it happens cause I don't have a clue what is happening around me. I try to hide it at work cause I feel so stunned but it's hard when you have to communicate and you can't carry on a conversation till the surge in your brain stops. I could be talking to you and go blank but still awake and not know what I was talking about and can't respond either or put words in a sentence to communicate. My legs go weak and I feel nausea. Then I am alright after a few minutes. But it is such a horrible feeling. And I think it's related to my hormones maybe early menopause But it's labelled Temporal Lobe Epilespy. I am getting use to dealing with it the same as when I got use to having migraine auras. But these seizure sensations are just horrible because you feel out of control. Grrrr! Other than that. I feel pretty good on my lamotrigne.
 
Hi guys thanks for the replies! I also find that music helps me it calms me down. ATM the headaches are driving me wild! Lamotrogine simply didn't work for me we had a very bad experience but I hope it all works out for you ! :)
 
Guys! Again I'm sorry to say but I can't help but feeling sorry for myself my depression is hitting me hard ATM me and my younger sister are at logger heads with one another I don't want to tell her but it really upset me. This past weekend I spent the entire weekend in bed I couldn't drag myself up to a world full of headaches arguing and feeling ill! It completely sucks! I honestly don't know how to cope anymore
 
Whatever it takes, try and get up and out. Call a friend, listen to music, go for a walk, read the paper --anything to connect with the outside world. Get away from the stuff that stresses you out (like your younger sister), and make a beeline for the things that make you happy.

Hang in there, we're thinking of you.
 
My younger sister is the biggest stress I have. I find that music really helps me but guarenteed my phone will die when I need it! Its always the way! Next week i will be fully off the keppra, i know it takes a few weeks to completely out of my system but i'm hoping the headaches and depression are a horrible side effect of the keppra and go away with it :) Thanks guys you are all so helpful on here!! :):)
 
Yay for being off keppra soon! I hope you will celebrate (safely) on your first keppra-free day.
 
Yeah can't wait so excited to see what good things tegretol will do for me! I'll go to the pub and have a drink ( a non alcoholic one ) :)
 
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