HI from Michigan!

[Nakamova]

Quite right -- I'm terribly sorry that I didn't state that better. OF COURSE I don't wish epilepsy on anyone -- and no reasonable person would. Let me try again: behind my poor statement was a wish that the doctor have empathy and insight into how a person with epilepsy feels. My neurologist's nurse has epilepsy, and it makes a world of difference in the way she treats and talks to patients.

 

[gabbyg2000]

I stumbled onto your site in googling epilepsy. I was diagnosed last year... I have Complex partial status epilepticus. I suffered a head injury 4 years ago, but was only just diagnosed this past Christmas. I am not receiving medications or treatment currently as I am having a VERY hard time finding a doctor cares enough to give me a second glance...sigh. I have my seizures every 19-22 days. They follow a very specific pattern, and when they hit, I have around 30 in a 24 hour span. I then spend 2-3 more days in bed very sore, fatigued and weak after they are done. I came to this site in hopes of meeting others like myself. I dont have any friends that have Epilepsy, and my family cant seem to connect with me either,...as they dont understand the severity of my illness.
I feel alot like i am just "complaining" about being sick..but I just cant help it. I feel sick all the time..and even when the big ones arent here,.my brain is always actively in seizure mode. I try to work around being sick, but depression is starting to take over....I feel lost...and need help
Thats what brings me to this site....Hope !!

xoxo

o my gosh that a crazy about in just one day !!! The most I've had in one day was 5 and I know that wore me out I was in the hospital for 6 days. I think you should look for a specialist that just focuses on epilepsy and the things to help you I did that and both my specialist and my neurologist work together to help me I hope you have look finding a doc
gabbyg2000

 

[LyLMyssChaos]

I just wanted to say hi Kathy! You are in my neck of the woods (in fact my kids school address is listed as Howell, even though it's in Hartland.)

Welcome to the site. I found it incredibly helpful when my son was first diagnosed and although I haven't been back recently because we seem to have his seizures under control I am sure I'll be around more because we are contemplating a med change.

Which doctors have you seen? My son sees a doctor through Michigan Institute for Neurological Disorders (they have offices in Farmington Hills, Madison Heights and Garden City) and they have been incredible! Sometimes they are back logged on appointments so you aren't seen at the time you are scheduled, but they are amazing doctors.